Diagnosed and surprised - no symptoms.

[hunterd]

all I can tell you about getting the appraisals for insurance, is the sooner the better I have found in my own personal experiences. Good luck to you

[bosman]

Thank you. I still think what to do.
Perhaps I am afraid it will become "real" when I start to take meds...

[Jules A]

Thank you. I still think what to do.
Perhaps I am afraid it will become "real" when I start to take meds...

Sadly when someone fairly young and I'm assuming otherwise healthy has two episodes of syncope with no other clear cause and lesions on MRI my thought it is already real. I'm sorry that you have to be here but glad you found this board. Although I think it is excellent that you are seeing a MS specialist it sounds like your present neurologist is providing appropriate care, information on prognosis and treatment options.

MS is highly variable and despite having too many lesions to count in my brain, lesions in my spine and myelomalacia, google that and see if it doesn't scare the pants off you, I was able to finish grad school, continue working between 40-50 hours a week and recently ran a 10k in 1 hour and 7 minutes. I was diagnosed 11 years ago. Despite feeling fairly good other than fatigue, bladder issues and parasthesia I have no delusions that I have this horrible disease.

I had two issues of double vision in the six months prior to starting Copaxone and although the symptoms noted above no other relapses. I have no clue if it is thanks to the Copaxone or just good luck but I'm not taking any chances and will continue injecting myself every night until I have a change in function or a true home-run comes along medication wise.

Best of luck to you with whatever you decide.

[bosman]

I was able to finish grad school, continue working between 40-50 hours a week and recently ran a 10k in 1 hour and 7 minutes. I was diagnosed 11 years ago.

Jules A- that gives a lot of hope and optimism. Thank you. I am glad you achieved so much. I am still learning about MS. Life brings many surprises and challenges , and if this is one of them I will accept it and learn to live with it. I guess there is no choice, is there?
Thanks.

[Jules A]

Jules A- that gives a lot of hope and optimism. Thank you. I am glad you achieved so much. I am still learning about MS. Life brings many surprises and challenges , and if this is one of them I will accept it and learn to live with it. I guess there is no choice, is there?
Thanks.

True! I figure I better make hay while the sun shines which to me is bringing in as much money as possible. Some days I'm bitter that as someone who was just 40 years old I was faced with dealing with the what-ifs of a horrific disease like MS but most days I'm very thankful that I have been blessed to be able to do so much in the time since my diagnosis.

Hang in there and please keep us posted.

[bosman]

. but most days I'm very thankful that I have been blessed to be able to do so much in the time since my diagnosis.

I hope I will be able to repeat your words some time from now.
Thanks

[Cindybridgeman]

Thank you. I still think what to do.
Perhaps I am afraid it will become "real" when I start to take meds...

Bosman...that is an interesting perspective since becoming "real" for me when I took meds was also my concern. I can tell you, though, since diagnosis, taking my Tec twice a day is routine and just another part of my life. I've been blessed for the two years since my diagnosis with good health, relatively speaking. Please know that your MS is not the same as my MS and is not the same as someone else's. However, there does come a time where there is a new "norm" and if you are blessed enough, you can accept it and live life to the fullest however you can.

Take care and good luck.

[bosman]

Thank you Cindybridgeman

Thank you everybody for your wise, helpful advises . I have my second opinion app. in 3 weeks. I can't wait to learn what will the MS specialist tell me.

I wish you Happy, quiet, healthy Holidays .

[bosman]

Hello again,

Two months ago I was asymptomatic.. well yesterday my feet started to feel cold and weird. Almost like tingling. At first I was thinking my feet got cold because the outside temp reached 7F, and I tried to warm up. Then I realized it could be MS related.

My app ( second opinion in MS Clinic) is in 2 weeks. Is it ok to wait until my app? I can walk and everything , I just feel my feet weird.
What do you think?

[Mamabug]

Hello again,

Two months ago I was asymptomatic.. well yesterday my feet started to feel cold and weird. Almost like tingling. At first I was thinking my feet got cold because the outside temp reached 7F, and I tried to warm up. Then I realized it could be MS related.

My app ( second opinion in MS Clinic) is in 2 weeks. Is it ok to wait until my app? I can walk and everything , I just feel my feet weird.
What do you think?

When old symptoms return, or new symptoms begin, and they last as least 24 hours, you are likely having a relapse. Some other clues to determine if that is likely what is occurring are that the symptoms must be occurring 30 days or more following your last relapse and there are not other things going on (example: the flu) that might account for your symptoms.

http://www.rethinkmsrelapses.com/pag..._an_ms_relapse

If you suspect a relapse, I'd call your doctor now, rather than waiting two weeks and get your doc's advice regarding whether to move up the appointment to an earlier time.

[bosman]

Thank you Mamabug.
I
Also, I've been taking vit. B12, and read that tingling might be a symptom of overdosing B12. Can you really overdose B12? I did not think so.

[Mamabug]

Thank you Mamabug.
I
Also, I've been taking vit. B12, and read that tingling might be a symptom of overdosing B12. Can you really overdose B12? I did not think so.

I don't know a lot about B12. My understanding is that, usually, it is safe to take at recommended levels, and even at levels higher than the RDA. But, I'm no expert.

Are you still having tingling symptoms? If so, you may wish to try cutting back on your B12 to see if the symptoms are alleviated.

[bosman]

Are you still having tingling symptoms? If so, you may wish to try cutting back on your B12 to see if the symptoms are alleviated.

I stopped taking it completely. No change so far. We'll see in a few days.

[kw202]

Thank you Mamabug.
I
Also, I've been taking vit. B12, and read that tingling might be a symptom of overdosing B12. Can you really overdose B12? I did not think so.

B12 is water-soluble, which means whatever your body doesn't use, it washes out. As far as I have read, there does not seem to be a toxic dose of B12. It's important that you have enough in your body - the therapeutic-protective dose for people exhibiting neurologial symptoms is a serum level of AT LEAST 600 ng/l and ideally should be more around 1000 ng/ml. Vitamin D levels are also crucial - a therapeutic-protective D serum level for MS should sit around 80-90 ng/ml. High doses of vitamin D are also not believed to be toxic, however they can impact other nutrient levels (such as calcium and magnesium) and you should watch for that when you do blood tests. If you decide to supplement vitamin D -- and you should -- make sure you're also taking magnesium, and possibly vitamin K2 to ensure you calcium stays in your bones where it should.

I actually came here to post to let you know that it IS possible to have MS and not feel affected. I was there myself, until I wasn't.

I'm 43 and never had any significant health issues at all until just a few months ago I started going numb from my chest down to my toes. Went in for MRIs and discovered I have significant lesions on my spine (and just a few in brain). To my surprise, they are all old. And yet, I never had any real symptoms prior to this time. That means my body was just apparently living and dealing with MS for who knows how many years, without any real impact to me, until suddenly I wasn't anymore.

It's possible -- it happened to me, too.

[bosman]

thank you kw202

I started to realize that everything is possible. I did not have any symptoms when I started this thread, now i experience tingling in my feet, and when I touch them I get an electric like sensation.Very low voltage, but it is there.

Now when I think back... a while ago, every time I was sitting down, one side of my bottom felt warm. MS? Probably... Who knew...

I have a dr. visit this coming Wednesday...