Back in '98 I was put in the hospital for 9 days. I was losing my balance, dizzy, high blood pressure and high heart rate, quit breathing, high temp., blurred vision, memory lose, complete right side numbness, could not talk or walk and this was just a few thing wrong. The doctors had no idea what was wrong. I had a very high white blood cell count and spots on my brain.
During my stay, my neuro doc thought I was faking all of this and had me evaluated. Everything came out that I was not faking any of it and then neuro doc took me off all my meds and caused me to crash big time. Once this happened my wife fired that doctor and brought in another one. At this time I was so bad that they only gave me a few day to live. One thing I am thankful for is that I do not remember most of this happening.
Well I took a turn for the good and was able to be released after 9 days. This took me about 6 months to recover and then after almost a year to the day I had another attack that put me in the hospital for another 9 days with all the same problems again. The doctors still don't know what is wrong but my neuro said it was not MS.
So as the years went by and having small attacks here and there and being on a ton of pain meds to help with my pain. My wife had me change my neuro doc this year. Right before I was to be setup for another MRI, I had another attack while driving to a clients office over an hour away from my shop this May. My vision was going blurred and pulsing in an out. It was getting harder for me to breath. So I called my wife and told her that I need to go to the hospital quick. I was able to get back to town and as soon as I stopped to drop off my car I lost all feeling in my body and could not stay awake. Once I woke up I had a trach in and I was in the hospital. I now had more brain lesions and had another LP done which this was #10. This time once all the lab work can back it was with out being said I had MS.
This last attack took me over the edge. After being able to work at the age of 14 and never having a day without a job since then, I am no longer able to work. Walking is very hard for me to do and when I do walk I can only go maybe 200 feet before crashing again with tremors. My new neuro doc said that he has never seen anyone push them self like I had and he's not sure how I did it with the amount of damage I have. He ordered me to quit work and go on disability ASAP. It was and still is very hard for me to accept this fate. Not being able to drive or even walking to the mail box is the worse thing I have ever gone through. I still don't know how others do it and keep a smile on their face.
I guess this is one reason why I am here typing this post. Everyone that I see having MS looks like there is nothing wrong on the outside. The only thing I have to compare to is myself and the pain that I go through. If there are others with the same problems that I have, I would love to hear from you or really anyone else with MS.
Thanks for reading,
Jax
During my stay, my neuro doc thought I was faking all of this and had me evaluated. Everything came out that I was not faking any of it and then neuro doc took me off all my meds and caused me to crash big time. Once this happened my wife fired that doctor and brought in another one. At this time I was so bad that they only gave me a few day to live. One thing I am thankful for is that I do not remember most of this happening.
Well I took a turn for the good and was able to be released after 9 days. This took me about 6 months to recover and then after almost a year to the day I had another attack that put me in the hospital for another 9 days with all the same problems again. The doctors still don't know what is wrong but my neuro said it was not MS.
So as the years went by and having small attacks here and there and being on a ton of pain meds to help with my pain. My wife had me change my neuro doc this year. Right before I was to be setup for another MRI, I had another attack while driving to a clients office over an hour away from my shop this May. My vision was going blurred and pulsing in an out. It was getting harder for me to breath. So I called my wife and told her that I need to go to the hospital quick. I was able to get back to town and as soon as I stopped to drop off my car I lost all feeling in my body and could not stay awake. Once I woke up I had a trach in and I was in the hospital. I now had more brain lesions and had another LP done which this was #10. This time once all the lab work can back it was with out being said I had MS.
This last attack took me over the edge. After being able to work at the age of 14 and never having a day without a job since then, I am no longer able to work. Walking is very hard for me to do and when I do walk I can only go maybe 200 feet before crashing again with tremors. My new neuro doc said that he has never seen anyone push them self like I had and he's not sure how I did it with the amount of damage I have. He ordered me to quit work and go on disability ASAP. It was and still is very hard for me to accept this fate. Not being able to drive or even walking to the mail box is the worse thing I have ever gone through. I still don't know how others do it and keep a smile on their face.
I guess this is one reason why I am here typing this post. Everyone that I see having MS looks like there is nothing wrong on the outside. The only thing I have to compare to is myself and the pain that I go through. If there are others with the same problems that I have, I would love to hear from you or really anyone else with MS.
Thanks for reading,
Jax
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