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Long Road

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    Long Road

    Greetings to all. I'm new around here. I'm on of thoes unlucky guys that ended up with this charming diesease. My first attack showed up out of now where in 2011. Started with shooting down the spine, eyes went blurry, nerves started seending out pain. 24 hours later everthing from my tail down went numb, couldn't walk, use my legs.

    Family doc largely blew me off. Pain doc blew me off to. seems med school tells doc that men just can't possiblely have ms. I get told based on symptoms I must have lyme from a tick bite in 2008 that left no symptoms. All the testing was normal. Finally they got tired of me they send me in for a brain mri. I get told I have ms legions.

    My family doc didn;t even read the report. After antiboitcs did nothing. My symptoms vanished. I decied I need a neuro I go off looking for a neuro to find no one will see me because my family doc wrote lyme all over my chart. So I was left to suffer for 4 years.

    In may of this year I get another attack. I go into my new family doc get. Nope still can't possibley be ms. ms should cause any pain at all. You must have a infection that has lasted for 4 years and surrvived months of antiboitcs!

    I finally got a decnt neuro and do another brain mri. Now I have old and new ms legions. He finally agrees with me, however he decieds to blow town for 3 months and I am stuck waiting until december. I tried finding another neuro, and he was running a medical scam. So that is where I am today. Sorry I needed to vent I am sick to death of kansas city docs. Thats me. Good to meet you all.

    ** Moderator's note - Post broken into paragraphs for easier reading. Many people with MS have visual difficulties that prevent them from reading large blocks of print. **

    #2
    Hi there!

    Nice to meet you, but sorry for the reason you are here!

    Hang in there and don't give up on finding a good neuro. MS is a rough row to hoe, so you need the right tools to work with, and finding an MS specialist is a good place to start.

    If you contact the MS society they can help you find one in your area.


    Hope you find what you are looking for!
    Echo
    DX 2007 Started Ocrevus on 2/14/2018

    "Some where over the rainbow...."

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      #3
      Delayed DX

      Sorry you had to go through that. Seems this is a common occurrence. I was also put off and told I needed to see a psychologist! Very depressing. I finally found a wonderful Neuro that specializes in MS! What a life saver. I don't know why doctors hesitate to give the DX. Hope you have your symptoms under control. I find that having a regular exercise routine helps me in so many ways. Good luck to you and happy days in the future! Lu

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