Hello.
First, I must say I've found these forums a valuable place to browse and "stalk" the past month or so. I'm glad I found this resource and community.
I'm a 37 year-old husband/father diagnosed with MS March of 2015. Started on Tecfidera right away in March and by August my arms and chest were turning bright red within 20 minutes of taking the meds and they had to take me off of it for fear of worsening med reaction.
I should be starting Plegridy in the next 1-3 weeks. Awaiting prior auth and delivery and then the q2 week poking begins. Not a big deal - we poked each other routinely in nursing school haha.
My main concern right now is my spasticity. It is especially bad in my legs. My neuro started me on Baclofen 10 mg at bedtime one month ago. They have increased it to 50 mg per day over 4 doses (20 mg at bedtime) and are considering more. I am also being scheduled to see a physiatrist.
Does spasticity typically go from nonexistent to terrible - all day long, bothersome at times, painful at times - all in one month ? One month ago my legs were fine. I had none of this. I was also just stopping Tecfidera. Does stopping a DMT make one more likely to have an exacerbation of some sort before starting the next med?
Thanks for any input and nice to meet you all.
Sazed
First, I must say I've found these forums a valuable place to browse and "stalk" the past month or so. I'm glad I found this resource and community.
I'm a 37 year-old husband/father diagnosed with MS March of 2015. Started on Tecfidera right away in March and by August my arms and chest were turning bright red within 20 minutes of taking the meds and they had to take me off of it for fear of worsening med reaction.
I should be starting Plegridy in the next 1-3 weeks. Awaiting prior auth and delivery and then the q2 week poking begins. Not a big deal - we poked each other routinely in nursing school haha.
My main concern right now is my spasticity. It is especially bad in my legs. My neuro started me on Baclofen 10 mg at bedtime one month ago. They have increased it to 50 mg per day over 4 doses (20 mg at bedtime) and are considering more. I am also being scheduled to see a physiatrist.
Does spasticity typically go from nonexistent to terrible - all day long, bothersome at times, painful at times - all in one month ? One month ago my legs were fine. I had none of this. I was also just stopping Tecfidera. Does stopping a DMT make one more likely to have an exacerbation of some sort before starting the next med?
Thanks for any input and nice to meet you all.
Sazed
Comment