Hi, everyone.
I was diagnosed on August 16th after a busy 2 weeks of MRIs, tests, two neurologists, etc. My days now fluctuate between being in "action mode" to fight it, denial, and confusion. I've been reading these boards and learning much from all of you - so thanks.
I'll soon be on a DMT. After doing the research I wanted to get onto Betaseron, but my insurance considers it a step medication and won't approve unless I've been on Copaxone and Rebif and those don't work. I've never had a serious illness before and never imagined, since I have health insurance through my employer, that getting access to medications & tests would be difficult. What a wake-up call.
I'm leaning toward Rebif, even though the side effects concern me. As does the stinging/burning when injecting. I'll pre-medicate and take note of all the tips I'll learned from reading various posts here.
I am a very active 41 year old. I have a demanding career. I am currently single, and while on one level am glad I don't have the concerns about caring for my children, I also am fearful since I don't have a family here to support me. [My family live in other states.]
I travel outside of the US, for 2-4 weeks at a time, about twice a year. During these trips I am staying in hostels/hotels without refrigerators in the rooms, and often without A/C in the room (though a fan is there). These trips are a very important part of my life, and I am concerned that with the meds needing to be kept at certain temperatures I am going to have to adjust this. Do any of you travel, and can comment on how you've adapted? I figure when traveling in the US I can request a refrigerator be placed in the hotel room. But what about overseas where this may not be an option?
I think you guys are going to be a major source of support for me. I'm glad I found you!
phoebe.
I was diagnosed on August 16th after a busy 2 weeks of MRIs, tests, two neurologists, etc. My days now fluctuate between being in "action mode" to fight it, denial, and confusion. I've been reading these boards and learning much from all of you - so thanks.
I'll soon be on a DMT. After doing the research I wanted to get onto Betaseron, but my insurance considers it a step medication and won't approve unless I've been on Copaxone and Rebif and those don't work. I've never had a serious illness before and never imagined, since I have health insurance through my employer, that getting access to medications & tests would be difficult. What a wake-up call.
I'm leaning toward Rebif, even though the side effects concern me. As does the stinging/burning when injecting. I'll pre-medicate and take note of all the tips I'll learned from reading various posts here.
I am a very active 41 year old. I have a demanding career. I am currently single, and while on one level am glad I don't have the concerns about caring for my children, I also am fearful since I don't have a family here to support me. [My family live in other states.]
I travel outside of the US, for 2-4 weeks at a time, about twice a year. During these trips I am staying in hostels/hotels without refrigerators in the rooms, and often without A/C in the room (though a fan is there). These trips are a very important part of my life, and I am concerned that with the meds needing to be kept at certain temperatures I am going to have to adjust this. Do any of you travel, and can comment on how you've adapted? I figure when traveling in the US I can request a refrigerator be placed in the hotel room. But what about overseas where this may not be an option?
I think you guys are going to be a major source of support for me. I'm glad I found you!
phoebe.
Comment