Hello. My name is Wendy.
Let me first say that I know this is not an NMO forum which I'm sure I'll hear that. However, due to the lack of U.S. NMO forums and since I can't read the languages of the forums that do exist, I find myself here. I'm sure that it also seems pointless to even discuss NMO due to life expectancy, treatment and so on and so forth but I saw some NMO patients post here too. Perhaps I should start my own forum as well but being as my eyesight is now becoming an issue, my main concern wouldn't be how to maintain my own forum.
So if no one minds me not making comparisons and just listening and you just might after I tell you about a bit about me, then I'd like to be a fly on the wall at most.
I was diagnosed with NMO August of last year.
I am 37 years of age now.
Ironically enough, I grew up in a family with 5 MS patients. All different types of MS.
Most of us all see the same neurologist. I like many people have a love/hate relationship with my neurologist. She really is the best for me.
So, naturally it would seem to be that we all have something in common and since I grew up around MS, I would know a lot about that but the tears on my sister's ( MS patient/nurse)
face when the words NMO came out of my doc's mouth, I was clueless.
Well, a year later and Rituxan treatments and a hit of steroids here and there and I get worse everyday.
I have a very supportive husband and a joyful 5 year old. They are something special.
A year ago, I don't think I would have ever seen this coming.
I cope just fine and hope that there would be something pop up.
I wish this was a forum for both as I am envious of all the info provided for MS and am appreciative to pass it on for my family discussions for them.
Sorry about the book but I don't like walking uninvited into someone's house without explaining myself.
Cheers!
Let me first say that I know this is not an NMO forum which I'm sure I'll hear that. However, due to the lack of U.S. NMO forums and since I can't read the languages of the forums that do exist, I find myself here. I'm sure that it also seems pointless to even discuss NMO due to life expectancy, treatment and so on and so forth but I saw some NMO patients post here too. Perhaps I should start my own forum as well but being as my eyesight is now becoming an issue, my main concern wouldn't be how to maintain my own forum.
So if no one minds me not making comparisons and just listening and you just might after I tell you about a bit about me, then I'd like to be a fly on the wall at most.
I was diagnosed with NMO August of last year.
I am 37 years of age now.
Ironically enough, I grew up in a family with 5 MS patients. All different types of MS.
Most of us all see the same neurologist. I like many people have a love/hate relationship with my neurologist. She really is the best for me.
So, naturally it would seem to be that we all have something in common and since I grew up around MS, I would know a lot about that but the tears on my sister's ( MS patient/nurse)
face when the words NMO came out of my doc's mouth, I was clueless.
Well, a year later and Rituxan treatments and a hit of steroids here and there and I get worse everyday.
I have a very supportive husband and a joyful 5 year old. They are something special.
A year ago, I don't think I would have ever seen this coming.
I cope just fine and hope that there would be something pop up.
I wish this was a forum for both as I am envious of all the info provided for MS and am appreciative to pass it on for my family discussions for them.
Sorry about the book but I don't like walking uninvited into someone's house without explaining myself.
Cheers!
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