New to group. Diagnosed with MS... again
Hi! My name is Laura and I am a very blessed mother to 7 children, ages 21 years old down to 1 month old. I am married to my best friend and this year will mark our 23rd year. I have always been a full time wife and mom, but am now a sophomore in college attempting to earn a degree in Christian Counseling.
July 2012, my feet became numb and over a course of three days, it ascended all the way to my neck. This was predominantly on my left side but eventually both sides were affected. I was admitted into the hospital when a large lesion was found at the C2 level of my spinal cord (MRI of brain was clear), treated with IV steroids and after 7 days, was sent home on a walker. We flew to Mayo and they said it was "probable MS".
We came home and found a local neuro who claimed to see 6 brain lesions, diagnosed me with "definite MS" and put me on Tysabri and myriad of other drugs, including Vimpat, claiming I had seizure activity on EEG. I became unable to think and speak clearly, and fell unconscious down a flight of stairs. We flew back to Mayo a year since the first time, who said I needed to cease all meds, that my brain MRI was still clear and that they still only seen one lesion at C2 and that they did not believe I had MS. They also deemed me as not having seizure activity, and said all those issues were from being over medicated. After stopping all drugs, I felt so much better but then became pregnant after an IUD failure. I considered myself no longer an MS patient. I truly believed I did not have MS.
The pregnancy went fine until I had a severe bout with the flu and again, my feet became numb. This time the numbness came up to mid-back and then turned into spacity. I fell but the baby wasn't hurt. Right after birth, I had an MRI with contrast and a new lesion was found on my spine at T6 and a large lesion was found in my brain. We flew, once again to Mayo and they diagnosed me this time with "definite MS".
I will visit a new local neuro in a few weeks and plan to commence Copaxone. I like the idea of it having no major risks and only a few side effects.
So, that about wraps up the last 3 years and my MS story. I appreciate this site and look forward to learning and sharing this experience with others going through it.
Thanks for reading,
Laura
July 2012, my feet became numb and over a course of three days, it ascended all the way to my neck. This was predominantly on my left side but eventually both sides were affected. I was admitted into the hospital when a large lesion was found at the C2 level of my spinal cord (MRI of brain was clear), treated with IV steroids and after 7 days, was sent home on a walker. We flew to Mayo and they said it was "probable MS".
We came home and found a local neuro who claimed to see 6 brain lesions, diagnosed me with "definite MS" and put me on Tysabri and myriad of other drugs, including Vimpat, claiming I had seizure activity on EEG. I became unable to think and speak clearly, and fell unconscious down a flight of stairs. We flew back to Mayo a year since the first time, who said I needed to cease all meds, that my brain MRI was still clear and that they still only seen one lesion at C2 and that they did not believe I had MS. They also deemed me as not having seizure activity, and said all those issues were from being over medicated. After stopping all drugs, I felt so much better but then became pregnant after an IUD failure. I considered myself no longer an MS patient. I truly believed I did not have MS.
The pregnancy went fine until I had a severe bout with the flu and again, my feet became numb. This time the numbness came up to mid-back and then turned into spacity. I fell but the baby wasn't hurt. Right after birth, I had an MRI with contrast and a new lesion was found on my spine at T6 and a large lesion was found in my brain. We flew, once again to Mayo and they diagnosed me this time with "definite MS".
I will visit a new local neuro in a few weeks and plan to commence Copaxone. I like the idea of it having no major risks and only a few side effects.
So, that about wraps up the last 3 years and my MS story. I appreciate this site and look forward to learning and sharing this experience with others going through it.
Thanks for reading,
Laura
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