What to do.?

[funstuff]

Here is my problem.
My one Dr. said I got MS. The other one, said I don't have it.
I'm on MS meds, but now I have to go to a 3 Specialist, to see
if I got it or not.
I don't know, how to deal with it. It's sooooo stressful, not to know
what's wrong with me.
Thank you.

[22cyclist]

I am sorry you are so stressed. Go to the MS Specialist's appointment. They will know whether or not you have MS by doing a thorough neurological exam, reviewing your medical records and your MRIs. You may need more MRIs or further evoked potential testing. Time will tell. You may even need an LP. However, you can generally get that done all at the specialists office since most are in a hospital. I would seriously ask the one who thinks you have no MS to go over why he thinks that, and if he thinks the DMT will be harmful to you. These are not drugs to be taken lightly, or willy nilly.

Good luck
Lisa

[Mamabug]

The road to an accurate dx, for some of us, can be a long and difficult one.

Four or five months after my MS came barrelling into my life, I was dx, following 2 major flares, three ER visits and hospitalizations, two months of sleeping 16-20 hour days and almost no short-term memory, multiple tests at a somewhat local hospital, and many more, during a two-week visit to Mayo Clinic, with:
"probable Central Nervous System Lupus, but, we're not ruling out MS".

It wasn't until more than a year later that my local neurologist was able to accurately dx MS. By that time, my tests included many, most of which I'm not able to name. Visual fields, evoked potentials, Lumbar Puncture (also known as spinal tap), 7 MRI's, etc, etc.

Five years later, when I switched from a general neurologist to an MS Specialist, my new doc actually did some re-testing to confirm my MS dx, as she was unsure at that point. You'll see some of my journey in my "signature".

MS is difficult to dx because, even those tests that give a lot of information and help to point to MS are not truly definitive of MS. A combination of medical tests, looking at symptoms, and looking at time and space between flares can help doctors to get to an accurate dx.

I'm not sure what I'm trying to tell you, exactly, except that it may just require a lot of patience. Hang in there, and don't give up pushing for a dx.