Hello everyone reading this. I am 35yo and am currently undergoing diagnosis. My symptoms started about 5 years ago but my Dr was just treating the symptoms as they came. First it was muscle spasms then drooping right side of face, throat going numb, dizziness, emotional issues and now since Dec unbelievable fatigue and shaking like crazy.
My first neuro thought muscle disease so I've had tons of blood work, emg, ncs, and muscle biopsy. She referred me to U of Michigan neuromuscular. The first main Dr there said Lymes or MS. I had a brain MRI done and it was clean. Lymes test clean. She still says MS tho. The second time I went back I saw the same resident but different main Dr. He didn't even look through my chart and said it's headaches. So he's referring me to the headache neuro section of drs. I wrote them a email stating my feelings and thoughts but he would not even give thought to what his colleague saw on me and planned out.
So I am going to go to the headache Dr like he wants but in the mean time I made a appt at the institute of neurological disease center. I really think they will get to the bottom of it.
Some days I feel horrible about myself because I can't do anything like I used to. My husband tries to act like he cares but it's always been about him. Some of the comments just cut me to the core.
I'm hoping being involved with people who understand how I feel will help me on this horrible journey. Thanks for listening. I can't wait to meet all you.
My first neuro thought muscle disease so I've had tons of blood work, emg, ncs, and muscle biopsy. She referred me to U of Michigan neuromuscular. The first main Dr there said Lymes or MS. I had a brain MRI done and it was clean. Lymes test clean. She still says MS tho. The second time I went back I saw the same resident but different main Dr. He didn't even look through my chart and said it's headaches. So he's referring me to the headache neuro section of drs. I wrote them a email stating my feelings and thoughts but he would not even give thought to what his colleague saw on me and planned out.
So I am going to go to the headache Dr like he wants but in the mean time I made a appt at the institute of neurological disease center. I really think they will get to the bottom of it.
Some days I feel horrible about myself because I can't do anything like I used to. My husband tries to act like he cares but it's always been about him. Some of the comments just cut me to the core.
I'm hoping being involved with people who understand how I feel will help me on this horrible journey. Thanks for listening. I can't wait to meet all you.
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