Hi my name is Sharon and I'm pretty sure that I am going batty! 
I started having MS-like symptoms last December. Crushing chest discomfort, numbness and tingling in my right are & leg. Went off to the doctor not even thinking the two were related. She sent me off for an MRI and bingo brain lesions in my corpus callosum. Off to the neurologist, more MRIs, and now a diagnosis of CIS. The Neuro put me on Cymbalta (low dose) for the nerve pain, which basically made my right arm useless. The Cymbalta has really helped. After doing some research though I see a few 'symptoms' that I have had for quite some time which my regular doctor chalked up to 'aging'.
The Neuro has not put me on any DMD since it is only a cis diagnosis and I only have 4 (possibly 5) lesions in one area of my brain. Although I have had worsening of symptoms at times and this mind numbing fatigue (worse than even after having babies!) I have not had a relapse.
Highly frustrating at times though as my community doesn't have a dr who specializes in MS (or is even really knowledgeable), nor MS Nurse, nor clinic! That's why am so happy to have found this site. The Neuro I see is a 4 1/2 hour drive away from my home community
My last visit, on Monday, made me even more frustrated because even though his office called me to set up the appointment he had no idea why I was there. When I asked him questions about my fatigue and a couple of other things about MS, he got kind of snappy with me and told me that I only have had one episode of CIS and that people with MS have hundreds of lesions not just four. Made me feel like I was wasting his time!
Now I really feel like I am in limbo and not sure what to do next. Oh well. Happy to be here and to read other people's stories
I started having MS-like symptoms last December. Crushing chest discomfort, numbness and tingling in my right are & leg. Went off to the doctor not even thinking the two were related. She sent me off for an MRI and bingo brain lesions in my corpus callosum. Off to the neurologist, more MRIs, and now a diagnosis of CIS. The Neuro put me on Cymbalta (low dose) for the nerve pain, which basically made my right arm useless. The Cymbalta has really helped. After doing some research though I see a few 'symptoms' that I have had for quite some time which my regular doctor chalked up to 'aging'.
The Neuro has not put me on any DMD since it is only a cis diagnosis and I only have 4 (possibly 5) lesions in one area of my brain. Although I have had worsening of symptoms at times and this mind numbing fatigue (worse than even after having babies!) I have not had a relapse.
Highly frustrating at times though as my community doesn't have a dr who specializes in MS (or is even really knowledgeable), nor MS Nurse, nor clinic! That's why am so happy to have found this site. The Neuro I see is a 4 1/2 hour drive away from my home community
My last visit, on Monday, made me even more frustrated because even though his office called me to set up the appointment he had no idea why I was there. When I asked him questions about my fatigue and a couple of other things about MS, he got kind of snappy with me and told me that I only have had one episode of CIS and that people with MS have hundreds of lesions not just four. Made me feel like I was wasting his time!
Now I really feel like I am in limbo and not sure what to do next. Oh well. Happy to be here and to read other people's stories
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