Hello,
My name is Jamie and I've recently been on this long drawn out quest for just wanting to know what is wrong with me. Sadly I'm not even sure that most dr's now a days can truly say they know what they are doing...
Well i first noticed my symptoms after the birth of my son. First my entire right leg went completely numb I couldn't even stand on it without falling to the floor. Eventually, about two days later, it just turned into the tingling feeling, but I could stand on it. Then i had what felt like electricity starting at the curve of my back down the backside of both of my legs.
So my pcp sent me for a mri of my lower back. Which came back as just a bulging disc, an annular tear and a lesion. Well, a few months go by,it goes now where with dr we just let it go, as of now I'm completely depressed for no godly reason, I just feel cloudy like I'm walking around in this thick fog. There are times when people talk to me and I hear what they said but I don't understand what they told me, and I think to myself, I know I know the words they just said to me but why don't I understand them. I never use to have this problem, I was on the national honor society.
Then the whole right side of my head and down my right shoulder/arm and hand go completely numb. I go to the dr and let him know, he immediately schedules me for a brain mri because of course he is thinking hum lets make sure its not a stroke. So They do the scan and it comes back with 18 white matter lesions, and an 8mm cyst on my pineal gland, and a half empty sala, which Is the pituitary gland seems to be not working properly i guess.
Of course they are now drawing blood to rule out a whole crap load of ***, did you get bit by a tic, blah blah blah, over and over again. In the course of this long drawn out testing, my vision starts jumping where the entire image that I see starts shifting from left to right, like there is a hesitation, or an absence in the flow of the image that I see, I really dont know how to explain it.
For example, I had to do this, lets say your driving down a two lane road. All the sudden the on coming traffic jumps in your lane, then back out of your lane, then back in your lane, but in reality you pull over and realize it wasnt the car it was your eyeballs playing some whacked out trick on you, along with a minor ache in your eye.
Well, I get freaked out go to my pcp he schedules me for an ophthalmologist, I see them my pupils are two different sizes, I fail their visual field test and they eventually tell me that I have had an episode of optical neuritis. Which eventually went away after 11 days of pure torture. He also runs this test on me that made me crazy dizzy, and said that I have internuclear ophthalmoplegia.
So long story short I have finally gotten in to see a neurologist and they say your suffering from migraines, but I never have a head ache, but because all of your tests are inconclusive lets run a spinal tap then another brain mri in a year just to make sure its not ms.
I'm just a little frustrated/confused, cause my ophthamologist neurologist says i have a mild case of ms, and my neurologist says he is full of crap I have migraines...o boy... why can't they just agree...I'm so tired of feeling like I'm going crazy, cause I wasn't like this 5 years ago, and now I feel off balance all the time, have twitching all over my body, sometimes when I try to sit completely still i can feel my upper body shaking like I have parkensins or something, I forget if I even seen or talked to someone, I have a hard time talking and understanding when people talk to me...I feel like I'm going crazy...
** Moderator's note - Post broken into paragraphs for easier reading. Many people with MS have visual difficulties that prevent them from reading large blocks of print. **
My name is Jamie and I've recently been on this long drawn out quest for just wanting to know what is wrong with me. Sadly I'm not even sure that most dr's now a days can truly say they know what they are doing...
Well i first noticed my symptoms after the birth of my son. First my entire right leg went completely numb I couldn't even stand on it without falling to the floor. Eventually, about two days later, it just turned into the tingling feeling, but I could stand on it. Then i had what felt like electricity starting at the curve of my back down the backside of both of my legs.
So my pcp sent me for a mri of my lower back. Which came back as just a bulging disc, an annular tear and a lesion. Well, a few months go by,it goes now where with dr we just let it go, as of now I'm completely depressed for no godly reason, I just feel cloudy like I'm walking around in this thick fog. There are times when people talk to me and I hear what they said but I don't understand what they told me, and I think to myself, I know I know the words they just said to me but why don't I understand them. I never use to have this problem, I was on the national honor society.
Then the whole right side of my head and down my right shoulder/arm and hand go completely numb. I go to the dr and let him know, he immediately schedules me for a brain mri because of course he is thinking hum lets make sure its not a stroke. So They do the scan and it comes back with 18 white matter lesions, and an 8mm cyst on my pineal gland, and a half empty sala, which Is the pituitary gland seems to be not working properly i guess.
Of course they are now drawing blood to rule out a whole crap load of ***, did you get bit by a tic, blah blah blah, over and over again. In the course of this long drawn out testing, my vision starts jumping where the entire image that I see starts shifting from left to right, like there is a hesitation, or an absence in the flow of the image that I see, I really dont know how to explain it.
For example, I had to do this, lets say your driving down a two lane road. All the sudden the on coming traffic jumps in your lane, then back out of your lane, then back in your lane, but in reality you pull over and realize it wasnt the car it was your eyeballs playing some whacked out trick on you, along with a minor ache in your eye.
Well, I get freaked out go to my pcp he schedules me for an ophthalmologist, I see them my pupils are two different sizes, I fail their visual field test and they eventually tell me that I have had an episode of optical neuritis. Which eventually went away after 11 days of pure torture. He also runs this test on me that made me crazy dizzy, and said that I have internuclear ophthalmoplegia.
So long story short I have finally gotten in to see a neurologist and they say your suffering from migraines, but I never have a head ache, but because all of your tests are inconclusive lets run a spinal tap then another brain mri in a year just to make sure its not ms.
I'm just a little frustrated/confused, cause my ophthamologist neurologist says i have a mild case of ms, and my neurologist says he is full of crap I have migraines...o boy... why can't they just agree...I'm so tired of feeling like I'm going crazy, cause I wasn't like this 5 years ago, and now I feel off balance all the time, have twitching all over my body, sometimes when I try to sit completely still i can feel my upper body shaking like I have parkensins or something, I forget if I even seen or talked to someone, I have a hard time talking and understanding when people talk to me...I feel like I'm going crazy...
** Moderator's note - Post broken into paragraphs for easier reading. Many people with MS have visual difficulties that prevent them from reading large blocks of print. **
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