Hello everyone. I'm a new member with MS World. I have discovered this site while doing some research on MS. I am a 45 year old female, wife and mother of two teenagers. Earlier this year, I was diagnosed with Cervical Dystonia (a fairly rare condition that causes head tremors). At present, the cause is unknown and am undergoing treatments which are, so far, unsuccessful.
During the last 15 years, I have been living many of the MS symptoms, and complaining about them to my GP, without ever linking them to MS. However, in recent months, my symptoms have been getting worse and some new ones have appeared since I the head tremors started last September.
My symptoms include: extreme fatigue that worsens in late afternoon and improves in evening, sensitivity to light, major cognitive issues, memory problems, sexual difficulties, bladder dysfunction, core body temperature problems (different from hot flashes), loss of balance/coordination, drop things a lot, often walk into walls, shock sensations in neck and hand (on several occasions), muscle spasms (Charley horse), vision difficulties and more.
Now does it sound like MS to you??
Since then, I have been doing much research trying to connect the dots and putting my family's medical history together. With the help of my former GP (now retired), I have been tested for all sorts of things in order to eliminate any or all possible mimics. My new GP is not very quick in helping me get to the bottom of this (I don't think he believes it could be MS). And to think I have three cousins with confirmed MS dx. As for me, everything seems to point to MS.
My MRI from last November shows a lesion and some white matter hyper-intensities, apparently inconclusive. Earlier this month, I had a LP done and am now awaiting results. If the results are positive, I will be referred to a MS clinic. If negative, I don't know what I will do.
Either way, I am currently in limbo until the LP results come in. What should I do if my LP results come back normal?? I'm really tired of this waiting game. Please forgive me, I realize many of you have waited many years for your diagnosis. However, getting hit once with one condition (dystonia) and then learning I may a second condition is just a lot to take in. I've been on sick leave for a year now and would really like some answers. Your comments and suggestions are very welcome. Thank you!
Prayers and positive thoughts to all of you.
Artfan
During the last 15 years, I have been living many of the MS symptoms, and complaining about them to my GP, without ever linking them to MS. However, in recent months, my symptoms have been getting worse and some new ones have appeared since I the head tremors started last September.
My symptoms include: extreme fatigue that worsens in late afternoon and improves in evening, sensitivity to light, major cognitive issues, memory problems, sexual difficulties, bladder dysfunction, core body temperature problems (different from hot flashes), loss of balance/coordination, drop things a lot, often walk into walls, shock sensations in neck and hand (on several occasions), muscle spasms (Charley horse), vision difficulties and more.
Now does it sound like MS to you??
Since then, I have been doing much research trying to connect the dots and putting my family's medical history together. With the help of my former GP (now retired), I have been tested for all sorts of things in order to eliminate any or all possible mimics. My new GP is not very quick in helping me get to the bottom of this (I don't think he believes it could be MS). And to think I have three cousins with confirmed MS dx. As for me, everything seems to point to MS.
My MRI from last November shows a lesion and some white matter hyper-intensities, apparently inconclusive. Earlier this month, I had a LP done and am now awaiting results. If the results are positive, I will be referred to a MS clinic. If negative, I don't know what I will do.
Either way, I am currently in limbo until the LP results come in. What should I do if my LP results come back normal?? I'm really tired of this waiting game. Please forgive me, I realize many of you have waited many years for your diagnosis. However, getting hit once with one condition (dystonia) and then learning I may a second condition is just a lot to take in. I've been on sick leave for a year now and would really like some answers. Your comments and suggestions are very welcome. Thank you!
Prayers and positive thoughts to all of you.
Artfan
Comment