I'm Cindy

[cindy jo]

Hi, my name is Cindy. I'm 47 yoa with two grow sons. Been married 27 years. I'm a psychotherapist. Two dogs. Live simple. Why am I here?

I've had neurological difficulties since 2006 and was tested for MS in 2007 which was negative. I'm also a type II diabetic. Neuropathy is my primary symptom but it is not the typical diabetic neuropathy. Rather than just hands and feet (which I have) but all over my body. Over the past couple of years my symptoms have changed/increased. I'm having myoclonic jerks all over. Dizziness, especially when standing or closing my eyes. Flickering and bouncing eye sensations when I shut my eyes. My face feels as if its about to go limp/numb. I'm waking up during the night/mornings and with internal tremors which has increased to during the day.

My doctor put me on a beta blocker until I can get in to see a neurologist. I've never been able to accept that it's diabetic neuropathy and especially with the new symptoms. My doctor said that she does not believe it's MS because I do not have paralysis. I've never had optic neuritis. The jabs, zips, zings, buzzes, numbness, dizziness, migraines and now tremors are my main symptoms.

[KitOP]

Hi Cindy,
Welcome to MSWorld. We have so many people here that are going through the same process as you are, I hope you can get some questions answered.

One does not have to have paralysis or optic neuritis to have MS. There are such a wide variety of symptoms.

A referral to a neurologist sounds like you are on track to try to get some of this figured out. I don't know what tests they did back in 2007, but I imagine that they would do another MRI, and may include a lumbar puncture. A series of blood work would also be ordered to rule out other medical conditions.

Good luck and please feel free to keep posting. We also have a chat on Wed evening at 8pm EST called "Patiently Waiting" for those going through this process. It may be a good opportunity to chat with others about what they are going through as well.

[Justsayyes]

Hi Cindy! Was curious as to why the doc put you on a beta blocker. Was it for anxiety? High blood pressure?
It's been 7 years since you were tested for MS. Did they do a MRI then? Hope you get some answers this time around!

[ZSP]

Hi Cindy,

I had a debilitating relapse in January 2012 and recovery has been difficult. What I wanted to address is the neuropathy you mention.

I have it over my entire body too. Being under an A/C vent, room fan, a little breeze outdoors, walking by a cold case at the grocery store...are just a few things that cause a reaction. I'd hoped this would go away because the other issues this causes for me aren't much fun to deal with.

I've been taking Lyrica 75 mg three times a day and it's made the neuropathy bearable at best.

I've never had paralysis but have had episodes of optic neuritis. I do occasionally have the jabs, zips, zings, buzzes, numbness, dizziness, migraines and slight tremors...just like you.

It's very frustrating. I hope you find the answers you're seeking.