Hi , I'm Meg from MD. I was diagnosed in June 2013, the day after my 35 birthday is when I noticed something wrong.
Both my feet were tingly(pins and needles) . I work full time , married , with 2 kids ,6 and 10. I am an office manager/purchaser for a landscape company so I am
Outside and inside , I move around a lot. So I walked around thinking I sat wrong and the feeling would come back. I then asked some of my coworkers - hey have your feet ever stayed tingly/numb. Well everyone said no and one guy said uh that's not good u need to see a dr. I brushed him off and thought I pinched a nerve in my back- although I don't have back problems or never did. I thought well I'm getting old.
This was Monday. Tuesday- same sensation in both feet. Tuesday evening I brought work home and I was sorting papers on my office floor. I was kneeling and sitting with my legs crossed. I got up to take a quick bathroom break.i drink lots of coffee or used to. Sorry if this is tmi but when I wiped I noticed I was numb ( not tingly just numb -like losing 50% of feeling ) I could feel but not really feel if that makes sense. If anyone has had an epidural it's like when the feeling starts coming back but it feels weird. I could still control my bladder etc, it was the whole perineal area all the way around from my hip bone to just below my rear. I could feel my legs down to my feel, but my feet were numb and tingly and my "saddle area' was numb.
So- I thought that is not good. Well I must have really pinched a nerve. I had little pain- just my lower back ached. By wed night it didn't go away so I made an appt to see my gp thurs. The doctor was alarmed, told me it may be ms but it could be lots of other things. He hugged me and found a neurologist that could see me the next day. His office made calls until they found one. I had an appt for Friday at 5pm.
Friday when I woke up the numbness was moving up from my feet and into my calves. I was scared And had my husband take me to er. I was admitted, and in the hospital fir 5 days. Lots of blood work, 2 MRI 'a, spinal tap, chest x-ray, and intravenous steroids( which I hated and didn't help me at all- I blowed up like a balloon , heart palpitations, and my veins were burning from my arm into my neck).
MRI of cervical showed active lesions and the thoracic spine showed an old lesion.
He neurologist sent me to a rheumatoid arth dr bc he thought that's what I had. Went there. They took blood. Nothing came back for that and when I went back to the neuro dr he said I have ms. Only one of my blood test results came back elevated so it was not a def marker for one disease.
I forget offhand - it was only elevated a little over 'normal' and it was homogenous.
I also have been having hives and itching all around my body. It changes daily. It is terrible. Oh it took about 6 weeks for my feeling to return to 'normal ' in my feet and saddle area.
I am just not completely convinced I have ms.
I have tingly off and on in my feet daily. Random twitching and random shooting nerve pains that happen all over my body but not daily. I do get back in my neck and legs and I take advil. I have horrible fatigue. And my
Memory is terrible now.
Right now the rash and hives are on my thighs and it is horrible. I'm on Benadryl around the clock. I have my follow up with my neuro tomorrow - he wants to up me on copaxone. I want to ask him about treatment for fatigue bc a zombie. Thanks for listening
Both my feet were tingly(pins and needles) . I work full time , married , with 2 kids ,6 and 10. I am an office manager/purchaser for a landscape company so I am
Outside and inside , I move around a lot. So I walked around thinking I sat wrong and the feeling would come back. I then asked some of my coworkers - hey have your feet ever stayed tingly/numb. Well everyone said no and one guy said uh that's not good u need to see a dr. I brushed him off and thought I pinched a nerve in my back- although I don't have back problems or never did. I thought well I'm getting old.
This was Monday. Tuesday- same sensation in both feet. Tuesday evening I brought work home and I was sorting papers on my office floor. I was kneeling and sitting with my legs crossed. I got up to take a quick bathroom break.i drink lots of coffee or used to. Sorry if this is tmi but when I wiped I noticed I was numb ( not tingly just numb -like losing 50% of feeling ) I could feel but not really feel if that makes sense. If anyone has had an epidural it's like when the feeling starts coming back but it feels weird. I could still control my bladder etc, it was the whole perineal area all the way around from my hip bone to just below my rear. I could feel my legs down to my feel, but my feet were numb and tingly and my "saddle area' was numb.
So- I thought that is not good. Well I must have really pinched a nerve. I had little pain- just my lower back ached. By wed night it didn't go away so I made an appt to see my gp thurs. The doctor was alarmed, told me it may be ms but it could be lots of other things. He hugged me and found a neurologist that could see me the next day. His office made calls until they found one. I had an appt for Friday at 5pm.
Friday when I woke up the numbness was moving up from my feet and into my calves. I was scared And had my husband take me to er. I was admitted, and in the hospital fir 5 days. Lots of blood work, 2 MRI 'a, spinal tap, chest x-ray, and intravenous steroids( which I hated and didn't help me at all- I blowed up like a balloon , heart palpitations, and my veins were burning from my arm into my neck).
MRI of cervical showed active lesions and the thoracic spine showed an old lesion.
He neurologist sent me to a rheumatoid arth dr bc he thought that's what I had. Went there. They took blood. Nothing came back for that and when I went back to the neuro dr he said I have ms. Only one of my blood test results came back elevated so it was not a def marker for one disease.
I forget offhand - it was only elevated a little over 'normal' and it was homogenous.
I also have been having hives and itching all around my body. It changes daily. It is terrible. Oh it took about 6 weeks for my feeling to return to 'normal ' in my feet and saddle area.
I am just not completely convinced I have ms.
I have tingly off and on in my feet daily. Random twitching and random shooting nerve pains that happen all over my body but not daily. I do get back in my neck and legs and I take advil. I have horrible fatigue. And my
Memory is terrible now.
Right now the rash and hives are on my thighs and it is horrible. I'm on Benadryl around the clock. I have my follow up with my neuro tomorrow - he wants to up me on copaxone. I want to ask him about treatment for fatigue bc a zombie. Thanks for listening
Comment