Hi everyone! I was just diagnosed with MS on June 6th. After reading a lot of posts on this forum, it seems like my diagnosis was done fairly fast. I had an MRI, lumbar puncture and blood work all within a week. It seems like my MS was easy to diagnose, mostly because of all the lesions that were found through the MRI. I was told that I've probably had MS for three years now. Considering all the lesions I am doing pretty well. Some tingling and dizziness, otherwise my left foot/leg stop working when I walk for more than 10 minutes. The walking is the most frustrating aspect for me, I am just 29 years old and last year at this time I still went running. Now that won't work for me anymore.
I am really hoping to find answers in this forum for my many questions and to exchange thoughts and ideas on this disease. There are a few things that currently concern me.
1) When the diagnosis was clear, my husband and I decided right away to try to conceive (fun part of the diagnosis so far;-). If the neurologist would have recommended against it, I would have started with medication. Now I am wondering if it would have been better to get a second opinion on this.
2) I am also just concerned whether I am taking the right steps in general. How do you find a good neurologist/physical therapist? How many opinions should you get?
3) It might sound silly at this point (and I hope it is silly), but I am really concerned that I might have PPMS. Only in 2009 I can pinpoint a time when I probably had an exacerbation, more tingling and extreme tiredness. Otherwise it just seems like tingling/dizziness have stayed around (not every day, but frequently) and my walking has become worse for a year. I also have moderate to severe burden of white matter lesions throughout the supra and intratentorial white matter and throughout the cervical and thoracic cord. Isn't this where people have lesions who have PPMS?
Again, I would be very grateful for input on any of my concerns. Thank you!
I am really hoping to find answers in this forum for my many questions and to exchange thoughts and ideas on this disease. There are a few things that currently concern me.
1) When the diagnosis was clear, my husband and I decided right away to try to conceive (fun part of the diagnosis so far;-). If the neurologist would have recommended against it, I would have started with medication. Now I am wondering if it would have been better to get a second opinion on this.
2) I am also just concerned whether I am taking the right steps in general. How do you find a good neurologist/physical therapist? How many opinions should you get?
3) It might sound silly at this point (and I hope it is silly), but I am really concerned that I might have PPMS. Only in 2009 I can pinpoint a time when I probably had an exacerbation, more tingling and extreme tiredness. Otherwise it just seems like tingling/dizziness have stayed around (not every day, but frequently) and my walking has become worse for a year. I also have moderate to severe burden of white matter lesions throughout the supra and intratentorial white matter and throughout the cervical and thoracic cord. Isn't this where people have lesions who have PPMS?
Again, I would be very grateful for input on any of my concerns. Thank you!
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