Good evening. I am at my wit's end. My son has had 5 episodes of migrating paresthesias/fatigue/brain fog in 9 months, and several relatives with MS or ADEM.
He saw the first neuro in Dec. 2012. She was competent but very detached, to put it mildly, and failed to establish any rapport with my son. The tests she ordered showed nothing except low Vitamin D. He then saw a family practitioner who dismissed him as a psych case. Second neuro referred him to a big teaching hospital that is 5 hours away. That appt. is several months from now and only the office visit (with a resident) is scheduled. Not one doctor has taken a full history. Is there something wrong with this picture?
My son is again in the middle of an episode. I would think the neuro would at least help him with his symptoms but the appt. lasted all of 10 minutes.
I am a nurse and am trying to help my son. He is not, in my opinion receiving "care." But I have no idea what to expect. Do we go find another neuro? Do we fly out to Mayo Clinic?
I know this post sounds very desperate. A year ago I had a spirited elderly mother and healthy sons, and this year I have a sick son and no mother. So yes after talking to my son today, his speech so slurred I had trouble understanding him, I feel a bit desperate. And would love people's thoughts.
He saw the first neuro in Dec. 2012. She was competent but very detached, to put it mildly, and failed to establish any rapport with my son. The tests she ordered showed nothing except low Vitamin D. He then saw a family practitioner who dismissed him as a psych case. Second neuro referred him to a big teaching hospital that is 5 hours away. That appt. is several months from now and only the office visit (with a resident) is scheduled. Not one doctor has taken a full history. Is there something wrong with this picture?
My son is again in the middle of an episode. I would think the neuro would at least help him with his symptoms but the appt. lasted all of 10 minutes.
I am a nurse and am trying to help my son. He is not, in my opinion receiving "care." But I have no idea what to expect. Do we go find another neuro? Do we fly out to Mayo Clinic?
I know this post sounds very desperate. A year ago I had a spirited elderly mother and healthy sons, and this year I have a sick son and no mother. So yes after talking to my son today, his speech so slurred I had trouble understanding him, I feel a bit desperate. And would love people's thoughts.
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