Hi there, I am Rachel and I have ??????.....
This new journey I am actually started about 16 months ago when I woke up and could not see out of my right eye...after a trip to the ER, a CT and a neuro-opto, I was told I had a case of "optic neuritis" and things would be back to normal in 6-8 weeks and guess what... They were!!!!
Besides a few "near misses" and a "few" holy cruds did I really just pee my bed - some cold toes, I had a pretty perfect year!! I even got a boyfriend!!!
Mid Feb 2013 my life changed....
1. I fell down the stairs - and nope I was not drunk....
2. My whole body but mainly my legs felt like I had the flu
3. Major pain in my right eye again....ARE YOU KIDDING ME???
4. A trip to the local ER to be told a had yet another UTI
5. An emergency brain MRI another confirmed case of "optic neuritis"
6. Down in the shower I went....really my legs were just shaved....
7. Another trip to a different ER which ended up me staying in the Nuero ICU for two days
8. A very painful spinal tap
9. A full body MRI
10. 5 very long more days in the hospital getting some IV steroid I have never heard of that made me hot, cold, angry, sad and to top it off gave me a horrible horrible taste in my mouth.
Here I am about to be 34 years old and a single mom of a 4 year old with a new shiny walker because I am weak but getting stronger and unable to really hold pen (but hey I can text!!!)
I have been home from the hospital 4 days....in that four days I have been told that my diagnosis will either be MS or NMO....that I am not released to go back to work till after April 26th....both things I have never heard of...are the doctors really sure????
I have 1 lesion on my brain and one lesion on my spine....
I am waiting on the NMO antigen blood results....
I now have a PT nurse that is coming to my house, an OT nurse and a thousands and 1 questions....
I am scared to "google" anymore than I already have and I am scared that I will not be able to take care of my daughter ....
A friend recommended MS world to me ....so here I am in limbo as I wait .....
This new journey I am actually started about 16 months ago when I woke up and could not see out of my right eye...after a trip to the ER, a CT and a neuro-opto, I was told I had a case of "optic neuritis" and things would be back to normal in 6-8 weeks and guess what... They were!!!!
Besides a few "near misses" and a "few" holy cruds did I really just pee my bed - some cold toes, I had a pretty perfect year!! I even got a boyfriend!!!
Mid Feb 2013 my life changed....
1. I fell down the stairs - and nope I was not drunk....
2. My whole body but mainly my legs felt like I had the flu
3. Major pain in my right eye again....ARE YOU KIDDING ME???
4. A trip to the local ER to be told a had yet another UTI
5. An emergency brain MRI another confirmed case of "optic neuritis"
6. Down in the shower I went....really my legs were just shaved....
7. Another trip to a different ER which ended up me staying in the Nuero ICU for two days
8. A very painful spinal tap
9. A full body MRI
10. 5 very long more days in the hospital getting some IV steroid I have never heard of that made me hot, cold, angry, sad and to top it off gave me a horrible horrible taste in my mouth.
Here I am about to be 34 years old and a single mom of a 4 year old with a new shiny walker because I am weak but getting stronger and unable to really hold pen (but hey I can text!!!)
I have been home from the hospital 4 days....in that four days I have been told that my diagnosis will either be MS or NMO....that I am not released to go back to work till after April 26th....both things I have never heard of...are the doctors really sure????
I have 1 lesion on my brain and one lesion on my spine....
I am waiting on the NMO antigen blood results....
I now have a PT nurse that is coming to my house, an OT nurse and a thousands and 1 questions....
I am scared to "google" anymore than I already have and I am scared that I will not be able to take care of my daughter ....
A friend recommended MS world to me ....so here I am in limbo as I wait .....
Comment