Hi, my dw has been diagnosed since 2001 - the same year I was offered an early retirement - - what a blessing that has been (as long as only the little things with the retirement package get "nibbled away" by the former employer).
In a nutshell, my dw is pretty much bed-bound; no transferring, gets really tired/sore trying to sit in her p/chair for more than an hour, and one hand is pretty much numb/clumsy. I can see it ain't fun for her.
I can pretty much do projects around the house and nearby community for diversion. Diversion is REALLY a good thing most days. Here's a couple: our church, W. P. Chrysler Museum (as in the car company) for my "day off", I get some buddies to do an MS Soc. fundraiser every year, I advocate for the MS Soc occasionally, I putter with old/cool cars, and - not nearly the least of these - a "Significant Others Support Group" of MS caregivers. This "SOSG" monthly meeting is a life/sanity saver for me; I now have somebody to call when the infrequent disaster strikes.
My advice that I would offer after 9ish years of helping deal with MS would be always respect your dear SO (significant other) and do find some occasional diversion/respite. Make the best of every situation, every day.
What would I like to know from other's experience? How do I continue respecting my dw/SO and finding a bit of a mental break occasionally if not frequently? ? ?
Sorry for the obvious confusion but that's what came to me that seems to sum up my world.
bob
In a nutshell, my dw is pretty much bed-bound; no transferring, gets really tired/sore trying to sit in her p/chair for more than an hour, and one hand is pretty much numb/clumsy. I can see it ain't fun for her.
I can pretty much do projects around the house and nearby community for diversion. Diversion is REALLY a good thing most days. Here's a couple: our church, W. P. Chrysler Museum (as in the car company) for my "day off", I get some buddies to do an MS Soc. fundraiser every year, I advocate for the MS Soc occasionally, I putter with old/cool cars, and - not nearly the least of these - a "Significant Others Support Group" of MS caregivers. This "SOSG" monthly meeting is a life/sanity saver for me; I now have somebody to call when the infrequent disaster strikes.
My advice that I would offer after 9ish years of helping deal with MS would be always respect your dear SO (significant other) and do find some occasional diversion/respite. Make the best of every situation, every day.
What would I like to know from other's experience? How do I continue respecting my dw/SO and finding a bit of a mental break occasionally if not frequently? ? ?
Sorry for the obvious confusion but that's what came to me that seems to sum up my world.
bob
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