Hello,
I am in a state of "waiting" as most of us are all too familiar with. My symptoms actually began in 1995 with an episode of my legs just giving out at work. I was a nurse in a clinic so they ran labs, all normal and sent me home to rest for a week. Did great after that. Then in 1997 i began to have epiesodes (that's what i call them anyway) of tremors, arm and leg weakness, fatigue. Saw family doc and was sent home to rest!
Later that year, had joint pain, he injected both hips. I did get some relief. We blamed the problems on my job (working in home health as a field nurse). So i was transferred to a desk job. In 1998 while getting prepared for my daughters wedding I suffered small, episodes of weakness in arms and legs, tremors, fatigue. Was finally sent to a neurologist.
Numerous tests and MRI showed nothing. I was referred to a rheum. and she told me i probably had fibromyalgia and needed to be on Prozac, Neurontin, and Ibuprofen. Then in 2001 I was hit with out of the blue episodes of double vison....HOLY COW!!! That's not fun when it hits while you are on the highway!!!! Sent to a new neuro.......MRI and tests showed nothing. She said i had very tired eyes. I was put on clonazepam to help me sleep better.
I have had episodes off and on since then but due to working for an Internist in her office we managed them when they would hit me. I have not seen a Neuro since. This year, in sept. I began to have slurred speech, fatigue that is debilitating and gets worse in the evenings, weakness in extremities, tremors in both arms and legs, spasticity, more double vision, and I am clumsier than an ox.
I saw an internist and she didn't like what she saw. My family doctor (whom I know personally) didn't like what he observed either. Nobody is saying the word MS outloud, but i know that I have way too many of the symptoms. I was told back in 98 that they were looking for MS but didn't see any lesions on my MRI so i feel like maybe i was misdiagnosed back then. I don't know.
I don't like the things my body is doing these days and am just looking for support, encouragement or comfort from others that can relate.
Thank you
** Moderator's note - Post broken into paragraphs for easier reading. Many people with MS have visual difficulties that prevent them from reading large blocks of print. **
I am in a state of "waiting" as most of us are all too familiar with. My symptoms actually began in 1995 with an episode of my legs just giving out at work. I was a nurse in a clinic so they ran labs, all normal and sent me home to rest for a week. Did great after that. Then in 1997 i began to have epiesodes (that's what i call them anyway) of tremors, arm and leg weakness, fatigue. Saw family doc and was sent home to rest!
Later that year, had joint pain, he injected both hips. I did get some relief. We blamed the problems on my job (working in home health as a field nurse). So i was transferred to a desk job. In 1998 while getting prepared for my daughters wedding I suffered small, episodes of weakness in arms and legs, tremors, fatigue. Was finally sent to a neurologist.
Numerous tests and MRI showed nothing. I was referred to a rheum. and she told me i probably had fibromyalgia and needed to be on Prozac, Neurontin, and Ibuprofen. Then in 2001 I was hit with out of the blue episodes of double vison....HOLY COW!!! That's not fun when it hits while you are on the highway!!!! Sent to a new neuro.......MRI and tests showed nothing. She said i had very tired eyes. I was put on clonazepam to help me sleep better.
I have had episodes off and on since then but due to working for an Internist in her office we managed them when they would hit me. I have not seen a Neuro since. This year, in sept. I began to have slurred speech, fatigue that is debilitating and gets worse in the evenings, weakness in extremities, tremors in both arms and legs, spasticity, more double vision, and I am clumsier than an ox.
I saw an internist and she didn't like what she saw. My family doctor (whom I know personally) didn't like what he observed either. Nobody is saying the word MS outloud, but i know that I have way too many of the symptoms. I was told back in 98 that they were looking for MS but didn't see any lesions on my MRI so i feel like maybe i was misdiagnosed back then. I don't know.
I don't like the things my body is doing these days and am just looking for support, encouragement or comfort from others that can relate.
Thank you
** Moderator's note - Post broken into paragraphs for easier reading. Many people with MS have visual difficulties that prevent them from reading large blocks of print. **
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