Hi there! I'm Lucy, 43 years old and i was diagnosed 15 years ago. Happily divorced for 10 years and mom of a teen son and grown daughter. For 6 years i was the primary caregiver for my Father (MS and Parkinsons) Mother (alzheimers) and best friend (cancer) and lost them all in the last 3 years.
Funny thing is...through all that, i rarely even stopped to think that i had MS, I did what i had to do. But now, with the house all quiet and just myself and my son here, with no strict schedule and plenty of rest (ive been known to still be in my jammies at 8pm lol) i seem to be going downhill, mainly cognitive (thus my name), but now major walking, balance and spasticity/pain. whats up with that? lol.
My friends tell me i just need a vacation, one well meaning friend that knows how much i loved to go fishing even convinced me to take my boat out again to relax. That ended with me stepping right off the boat deck onto the parking lot below (i think my son called it a face plant). Note to self...dont go fishing with temps in the high 90's lol. Anyway, i didnt mean to ramble, i just wanted to introduce myself and say how happy i am to have found you all, i wish i had had a place like this when i was first diagnosed. Thanks for listening!
** Moderator's note - Post broken into paragraphs for easier reading. Many people with MS have visual difficulties that prevent them from reading large blocks of print. **
Funny thing is...through all that, i rarely even stopped to think that i had MS, I did what i had to do. But now, with the house all quiet and just myself and my son here, with no strict schedule and plenty of rest (ive been known to still be in my jammies at 8pm lol) i seem to be going downhill, mainly cognitive (thus my name), but now major walking, balance and spasticity/pain. whats up with that? lol.
My friends tell me i just need a vacation, one well meaning friend that knows how much i loved to go fishing even convinced me to take my boat out again to relax. That ended with me stepping right off the boat deck onto the parking lot below (i think my son called it a face plant). Note to self...dont go fishing with temps in the high 90's lol. Anyway, i didnt mean to ramble, i just wanted to introduce myself and say how happy i am to have found you all, i wish i had had a place like this when i was first diagnosed. Thanks for listening!
** Moderator's note - Post broken into paragraphs for easier reading. Many people with MS have visual difficulties that prevent them from reading large blocks of print. **
Comment