Hi to all, I'm a mum of 3, I too have 2 kids on the spectrum. (read in other posts)
I have been type 2 diabetic since my 1st baby (strong family history)
Had been doing 3 gym classes a week till the day I woke with the worst and first ever migraine.
I will try to make this long winded. I have been ill for 2yrs now. What started with a terrible migrane followed by various blood test, cat scans, ultrasounds etc. Nothing ever showed up to be the cause. Migraine hung around for weeks.
Continuing muscular pain where it felt like my muscles had been ripped off my arms and legs and thrown back on.
A sleep study revealed shallow breathing and I sleep (when I dont have sinus) with cpap.
A;; this year my legs have been weak enough that I need to use my arms to pull myself up stairs. If I try and rise from a chiar my thighs just shake and I don't actually move.
I turn around backwards to walk up hills.
December I had a emg which was fine
4wk ago I had an mri which was 'remarkable'
March I had a bone scan which was also clear
2wks ago I purchased elbow crutches for around the house in the afternoons for when I had simply used all my energy.
5 days later I was shuffling on them and barely walking.
My gp rang my neuro an organised me to be admitted for a muscle biopsy, which was taken from my L thigh as that is my weaker side, so for now its waiting to find out if it shows anything helpful.
I continue to struggle to walk without my crutches. I have limited control over my R leg, I can raise it enough that I feel the tip of my shoe drag the floor.
I have to lift my legs into the shower, dont put things on high shelves I use often.
Get forgetful, words escape me, fingers sometimes are not as nimble, minor tremors on and off, esophegus works slowly and tend to drink water to force foods thru (barium swallow was fine)
I don't know for certain if it is ms, but my long time go is leaning toward ms while the gp I have locally that I have had while I have lived where now is at a loss.
He told me the other day I am consistently low in Vitamen D, and I am rather olive and do get sun.
previously checked parathyroid
on thyroxine for under-active thyroid
Asthmatic for all my life
take Nurontin for muscular pain and is very effective
I hope to find out some more things and hopefully this sounds a little familiar to someone.
I have been type 2 diabetic since my 1st baby (strong family history)
Had been doing 3 gym classes a week till the day I woke with the worst and first ever migraine.
I will try to make this long winded. I have been ill for 2yrs now. What started with a terrible migrane followed by various blood test, cat scans, ultrasounds etc. Nothing ever showed up to be the cause. Migraine hung around for weeks.
Continuing muscular pain where it felt like my muscles had been ripped off my arms and legs and thrown back on.
A sleep study revealed shallow breathing and I sleep (when I dont have sinus) with cpap.
A;; this year my legs have been weak enough that I need to use my arms to pull myself up stairs. If I try and rise from a chiar my thighs just shake and I don't actually move.
I turn around backwards to walk up hills.
December I had a emg which was fine
4wk ago I had an mri which was 'remarkable'
March I had a bone scan which was also clear
2wks ago I purchased elbow crutches for around the house in the afternoons for when I had simply used all my energy.
5 days later I was shuffling on them and barely walking.
My gp rang my neuro an organised me to be admitted for a muscle biopsy, which was taken from my L thigh as that is my weaker side, so for now its waiting to find out if it shows anything helpful.
I continue to struggle to walk without my crutches. I have limited control over my R leg, I can raise it enough that I feel the tip of my shoe drag the floor.
I have to lift my legs into the shower, dont put things on high shelves I use often.
Get forgetful, words escape me, fingers sometimes are not as nimble, minor tremors on and off, esophegus works slowly and tend to drink water to force foods thru (barium swallow was fine)
I don't know for certain if it is ms, but my long time go is leaning toward ms while the gp I have locally that I have had while I have lived where now is at a loss.
He told me the other day I am consistently low in Vitamen D, and I am rather olive and do get sun.
previously checked parathyroid
on thyroxine for under-active thyroid
Asthmatic for all my life
take Nurontin for muscular pain and is very effective
I hope to find out some more things and hopefully this sounds a little familiar to someone.
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