Found this site while trying to distract myslef from the pain that has woken me up again tonight. I have been going through a very long diagnosis process, over a year now, but after reading a few posts here I have learned that this is not unheard of. Got my fingers crossed that the latest MRI I had last week will provide new info/insights.
I have had so many changes to what "normal" means over the last year since I got sick. Trying to stay positive is something I am working hard on.
Things that work for me so far:
- a forearm walker with a seat helps me overcome my balance issues so I can walk, pause and sit, walk some more.
- a rigid AFO for the foot drop
- meds: gabapentin, amitriptyline, cymbalta
- painting, my new hobbie. I have recently discovered that I like painting landscapes in acrylic. Living in BC Canada there are a lot of nice views to choose from.
I would also like to try a scooter to conserve energy and I will be looking through the posts for a while to learn more about them.
Otherwise, I'm trying hard to just stay positive and find new ways to laugh once and a while.
I have had so many changes to what "normal" means over the last year since I got sick. Trying to stay positive is something I am working hard on.
Things that work for me so far:
- a forearm walker with a seat helps me overcome my balance issues so I can walk, pause and sit, walk some more.
- a rigid AFO for the foot drop
- meds: gabapentin, amitriptyline, cymbalta
- painting, my new hobbie. I have recently discovered that I like painting landscapes in acrylic. Living in BC Canada there are a lot of nice views to choose from.
I would also like to try a scooter to conserve energy and I will be looking through the posts for a while to learn more about them.
Otherwise, I'm trying hard to just stay positive and find new ways to laugh once and a while.
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