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New to the group. MS symptoms, hoping for diagnosis soon

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    New to the group. MS symptoms, hoping for diagnosis soon

    Hi,

    I started having symptoms about 12 yrs ago. I've been bounced around all that time trying to find out what's wrong. My GP has said for a long while all my symptoms are MS. She finally got me into the MS Clinic. We're praying for an answer. I have severe vision problems, balance is awful I fall alot, speech slurs and on and on. I recieved a great service dog in July named Riggs, he's changed my life. I am glad to have found this place, I've felt alone and scared a very long time. I look forward to getting to know folks.

    #2
    Hello!

    So sorry to hear about your troubles! I am currently yet to be diagnosed (seeing nuero periodically) and in high school.. It's so strange not having an official answer.

    Glad to hear your doc is helping you, and that you found a canine companion

    You aren't alone, and the people are on here are so friendly.

    Best wishes to you!!

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      #3
      Thank you for your welcoming note. I am sorry to hear you're still in the non-diagnosis limbo too. Until now I'd not found a place where the non-diagnosed belonged with those who were. I am so happy to have found MS World. Take care.

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        #4
        Welcome, Yelishia!

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          #5
          Welcome, Yelishia!

          The lack of diagnosis is horrible, I can completely relate. I hope that they will give you a definitive diagnosis soon so that you'll know what your next steps to take need to be.

          I remember when I had my first attack - shuffled around to different specialists & it got to the point where I wished somebody would just SAY that I had an inoperable brain tumor so that I could just get on with my life. The good news (and bad news) was that it wasn't a brain tumor. At least I have answers now Hope you'll get the answers you need too, and very soon!
          Dx RRMS 2008/Kesimpta Feb 2023
          UNbalanced Dog Trainer - Accredited pet dog training instructor

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            #6
            hello Yelishia.. i understand not being diagnosis..my MS diagnosis was easy..spinal tap/ and MRI..but i suffered for 2 yrs from 1997- 1999..with the same symptoms u mentioned..falling down flat like a board, slurred speech, face distorted, blurred and double vision, no balance..after 2 yrs of back and forth to drs in and out of hospitals.. my GP not my neurologist order some blood work because he was also confused by my symptoms..and when the lab work came back they said i might have another neurological disease called myasthenia gravis...turns out i did have it and this disease is where u lose control of ur involuntary muscles..thus the falling like a board, slurred speech, not being to chew food with mouth closed, not being able to move literally not able to sit or stand without help.. i totally understand ur pain and i encouraged u if they have not diagnosis u with MS please research myasthenia gravis..keep me posted and if u have any questions hit me up..trust me i know cause live with 2 neurological diseases...

            Stacey

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              #7
              They also thought I had myathenes gravis but did blood test for it and it was ruled out. Still dont know what I have yet.

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