Hi, everyone! I'm back on again after a few years. Got so caught up on Facebook, that I couldn't manage time for both.
I used to frequent this site with the username "Limboland," b/c I was undiagnosed for around 3 years. I did change my name to chitchat, but haven't been on in so long, I decided I should create a new account.
As I write this, many things have changed in my life. We got a dog (Goldendoodle, named Alfred
), we moved to a new house (split level; not very helpful at this time 
), and I've been teaching a developmental reading course at a local college since last fall.
Since being on Copaxone, I've had my ups and downs and had to get used to the daily injections. I've had sx triggered whenever I get sick, but I also have been doing well enough during summer of '10 and mid-late summer of '11 to walk my dog in the early mornings.
However, I just experienced a major relapse (end of Aug./beg. of September).
After a week of IV steroids didn't help, and culture taken for possible UTI showed negative, I went back to see my neuro. He was not pleased to see me in such bad shape.
Just had an MRI and am going to see a physical therapist on Monday and an occup. therapist on Wed. In addition, since my visiting parents have been driving me back and forth to work and scuttling me around in a manual wheelchair, my neuro wants me to be evaluated for use of a power chair/scooter.
So...this is where I am at present. Waiting to find out from a contractor (tomorrow) if it would be worth it to remodel to make my home more HC accessible or not. Wondering if I'll meet the qualifications (due to my home) for a power chair. Wondering if we'll have to save up for a downpayment on a new home and "make do" until then.
Waiting, praying, and hanging on. Thought I'd join you for awhile again, to gain some insight, advice, and (hopefully) encouragement.
I used to frequent this site with the username "Limboland," b/c I was undiagnosed for around 3 years. I did change my name to chitchat, but haven't been on in so long, I decided I should create a new account.As I write this, many things have changed in my life. We got a dog (Goldendoodle, named Alfred
), we moved to a new house (split level; not very helpful at this time ), and I've been teaching a developmental reading course at a local college since last fall.Since being on Copaxone, I've had my ups and downs and had to get used to the daily injections. I've had sx triggered whenever I get sick, but I also have been doing well enough during summer of '10 and mid-late summer of '11 to walk my dog in the early mornings.
However, I just experienced a major relapse (end of Aug./beg. of September).
After a week of IV steroids didn't help, and culture taken for possible UTI showed negative, I went back to see my neuro. He was not pleased to see me in such bad shape. Just had an MRI and am going to see a physical therapist on Monday and an occup. therapist on Wed. In addition, since my visiting parents have been driving me back and forth to work and scuttling me around in a manual wheelchair, my neuro wants me to be evaluated for use of a power chair/scooter.
So...this is where I am at present. Waiting to find out from a contractor (tomorrow) if it would be worth it to remodel to make my home more HC accessible or not. Wondering if I'll meet the qualifications (due to my home) for a power chair. Wondering if we'll have to save up for a downpayment on a new home and "make do" until then.
Waiting, praying, and hanging on. Thought I'd join you for awhile again, to gain some insight, advice, and (hopefully) encouragement.
Comment