I think I'll finally come out of hiding and introduce myself. I was DX'd in 11/2008 with MS , after 2yrs of suspected symptoms. My first hint anything was wrong was the optic neuritis in 2006. Then things went steadily down hill , even though my MRI was fine at the time of the ON in 2006.
After my MRI showed no lesions , i just tried to forget the 50% chance that I had MS or would have MS. But in 2008 the symptoms were just too overwhelming to keep ignoring. The extreme exhaustion, bladder issues,crazy numbness on & off, tingling,balance..etc...went back to Neuro MS specialist who said it was time for the LP and it came back no doubt + positive for MS and MRI scans showed
brain & cervical lesions.
So my journey on Copaxone began 11/2008. No horrible relapses. I have some minor ones, which I choose not to do steriods. My MD will only medicate major debilitating relapses. Which I am in favor of right now for me.
I have 3 wonderful children, 2 grown, 1 teen, 18 yr old.
A most supportive husband, who takes the endless MD appointments, tests,many RX's I have to take, ER visits from falls...etc...seems to be taking it all in stride now. It's become our new life...now.
I'm able to still work 40hrs. from home. My wonderful employer ( haven't revealed my DX to yet ) , gave me the option about 6 mos ago to start working from home and I grabbed it!
(Ironically I work doing Prior Authorizations for medications and have to deal with making decisions about chronically ill people and their medications)
I've probably made this too long but wanted to say hi !
Terie-tk
The best things in life aren't things.
After my MRI showed no lesions , i just tried to forget the 50% chance that I had MS or would have MS. But in 2008 the symptoms were just too overwhelming to keep ignoring. The extreme exhaustion, bladder issues,crazy numbness on & off, tingling,balance..etc...went back to Neuro MS specialist who said it was time for the LP and it came back no doubt + positive for MS and MRI scans showed
brain & cervical lesions.
So my journey on Copaxone began 11/2008. No horrible relapses. I have some minor ones, which I choose not to do steriods. My MD will only medicate major debilitating relapses. Which I am in favor of right now for me.
I have 3 wonderful children, 2 grown, 1 teen, 18 yr old.
A most supportive husband, who takes the endless MD appointments, tests,many RX's I have to take, ER visits from falls...etc...seems to be taking it all in stride now. It's become our new life...now.
I'm able to still work 40hrs. from home. My wonderful employer ( haven't revealed my DX to yet ) , gave me the option about 6 mos ago to start working from home and I grabbed it!
(Ironically I work doing Prior Authorizations for medications and have to deal with making decisions about chronically ill people and their medications)
I've probably made this too long but wanted to say hi !
Terie-tk
The best things in life aren't things.
Comment