I am truly fortunate to have a MS Neuro in whom I trust, so...when he suggested I look into SSDI I thought, "ohhh this is going to be so not fun". Not fun doesn't even to express the humiliation and disappointment I have felt through out my entire process thus far.
First, the paperwork, MERCY! If I could keep all it together I wouldn't have to ask for financial assistance. I would simply carry on working a job I love 40-50 hours a week.
Secondly. my MS diagnosis is indisputable...I saw 3 specialist hoping one would say I did NOT have MS. All tests (many) made my diagnosis clear-cut from my first MRI and have been supported by more tests.
Third, before any suspicion on my part of even remotely considering a MS diagnosis I had come to the sad realization that I could no longer continue to work the hours I was working and decreased my schedule to 24 hours a week.
Fourth, my world crashed to a halt,,,down to 12 hours a week and managing.
Fifth. My pay cut to 25% of former income, loss of all benefits.
Sixth ....Denied SSI
Seventh get a lawyer, complete copious amounts of paperwork divulging very personal aspects of my life.
Eighth. My husbands fills out similar forms stating how very little I can/do to contribute to caring for our home and each other. Devastating to read,,,but truthful.
Nine...here is when I lost all faith in the system. I was sent to a Doctor in Gary for a physical. The location of the clinic was surrounded by strip..."gentlemen's clubs", gas station and liquor stores. It looked like what I would imagine an abortion clinic would resemble in 1959...GRIM, dirty, awful.
Ten, I spent a half an hour with a nurse and yes you guessed it, I know every single thing regarding her health issues (in addition to what she had for breakfast and lunch). Unbelievably unprofessional.
Eleven...the real kicker. The Doctor. I must premise this next part, I have no problem having a Doctor that did not experience English as his/her 1st language, IN FACT MOST OF MY CURRENT TEAM OF PHYSICIANS that I see, respect and work with were not born in this country and honestly this has never been the slightest issue for me.
This however was unbelievable...I seriously could not understand a single word he spoke to me...not one! In addition to this unfortunate state of affairs he wiped his running nose on the sleeve of his lab coat at least three times during our short visit. Gross.
I see my MS neuro every 28 days when I go in for Tysabri, I do not understand how that is insufficient for SSDI and that they would send me to a place that I wouldn't let groom my dog for a medical examination.
If the purpose is to make me give up on the system as a whole...their mission has be accomplished.
First, the paperwork, MERCY! If I could keep all it together I wouldn't have to ask for financial assistance. I would simply carry on working a job I love 40-50 hours a week.
Secondly. my MS diagnosis is indisputable...I saw 3 specialist hoping one would say I did NOT have MS. All tests (many) made my diagnosis clear-cut from my first MRI and have been supported by more tests.
Third, before any suspicion on my part of even remotely considering a MS diagnosis I had come to the sad realization that I could no longer continue to work the hours I was working and decreased my schedule to 24 hours a week.
Fourth, my world crashed to a halt,,,down to 12 hours a week and managing.
Fifth. My pay cut to 25% of former income, loss of all benefits.
Sixth ....Denied SSI
Seventh get a lawyer, complete copious amounts of paperwork divulging very personal aspects of my life.
Eighth. My husbands fills out similar forms stating how very little I can/do to contribute to caring for our home and each other. Devastating to read,,,but truthful.
Nine...here is when I lost all faith in the system. I was sent to a Doctor in Gary for a physical. The location of the clinic was surrounded by strip..."gentlemen's clubs", gas station and liquor stores. It looked like what I would imagine an abortion clinic would resemble in 1959...GRIM, dirty, awful.
Ten, I spent a half an hour with a nurse and yes you guessed it, I know every single thing regarding her health issues (in addition to what she had for breakfast and lunch). Unbelievably unprofessional.
Eleven...the real kicker. The Doctor. I must premise this next part, I have no problem having a Doctor that did not experience English as his/her 1st language, IN FACT MOST OF MY CURRENT TEAM OF PHYSICIANS that I see, respect and work with were not born in this country and honestly this has never been the slightest issue for me.
This however was unbelievable...I seriously could not understand a single word he spoke to me...not one! In addition to this unfortunate state of affairs he wiped his running nose on the sleeve of his lab coat at least three times during our short visit. Gross.
I see my MS neuro every 28 days when I go in for Tysabri, I do not understand how that is insufficient for SSDI and that they would send me to a place that I wouldn't let groom my dog for a medical examination.
If the purpose is to make me give up on the system as a whole...their mission has be accomplished.
Comment