I didn't know where else to put this. I just have to get it out or so to speak. The flair that put me out of work happened 11/4 2011. I had to go home from work because I lost all energy and ability to stay upright, alert, etc. I was dizzy and light headed. This was all witnessed by my co-workers. My employer told me to not come back in this condition as I would be a liability with all the dangerous machinery I operated. Long story short; I knew it was an issue with my brain(been through a TBI when I was young), went to the emergency room for a CT scan and a referral to a neurologist.
I give him credit for a quick diagnosis(MRI, CSF test). So, I was officially diagnosed with RRMS in January 2012. My employer is a company with under 50 employees so by state law(MI)they do not have to provide disability coverage. I immediately applied for SSDI. Denied the first time, hired an attorney and they appealed it for me.
What my rant is; NOT ONE PERSON mentioned getting a Residual Functional Capacity Form filled out. Not my doctor, not SSI, and NOT EVEN MY ATTORNEY!!!!. I had to find this out on my own from the internet. I had a PT(referred by my Neurologist.) Come to my house for some home PT and not even she mention the RFCF. I am so angry that this was not mentioned or even required for the process of getting disability. I sent the form to my Neurologist to fill out but they told me that a PT had to do that. So I finally talked to the PT office and set up the appointment. Turns out, this is a long test and will take up most of the day to determine how disabled I am...WHY IS THIS PROCESS SO MISINFORMED AND DIFFICULT? I am just relieved right now because I feel I am finally going in the right direction. I am having the results faxed/sent to my PCP/current neurologist/Attorney/and new neurologist(btw, I am going to see another neurologist referred by my PCP on Feb 7-an MS specialist).
The ordeal of losing my income and having the wrong advice has cost me and my family much unnecessary stress.
I advise anyone who has lost the ability to work to get that RFC test done and have it completed when you file the first time..Perhaps you won't be denied.
Good luck to anyone new to this crap. Hopefully you don't go through the stress my family and I have.
I give him credit for a quick diagnosis(MRI, CSF test). So, I was officially diagnosed with RRMS in January 2012. My employer is a company with under 50 employees so by state law(MI)they do not have to provide disability coverage. I immediately applied for SSDI. Denied the first time, hired an attorney and they appealed it for me.
What my rant is; NOT ONE PERSON mentioned getting a Residual Functional Capacity Form filled out. Not my doctor, not SSI, and NOT EVEN MY ATTORNEY!!!!. I had to find this out on my own from the internet. I had a PT(referred by my Neurologist.) Come to my house for some home PT and not even she mention the RFCF. I am so angry that this was not mentioned or even required for the process of getting disability. I sent the form to my Neurologist to fill out but they told me that a PT had to do that. So I finally talked to the PT office and set up the appointment. Turns out, this is a long test and will take up most of the day to determine how disabled I am...WHY IS THIS PROCESS SO MISINFORMED AND DIFFICULT? I am just relieved right now because I feel I am finally going in the right direction. I am having the results faxed/sent to my PCP/current neurologist/Attorney/and new neurologist(btw, I am going to see another neurologist referred by my PCP on Feb 7-an MS specialist).
The ordeal of losing my income and having the wrong advice has cost me and my family much unnecessary stress.
I advise anyone who has lost the ability to work to get that RFC test done and have it completed when you file the first time..Perhaps you won't be denied.
Good luck to anyone new to this crap. Hopefully you don't go through the stress my family and I have.
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