I'm not sure if it must be taken 2x a day. It has helped with my strength, my walking speed is significantly better (my physical therapist says it is, too) but I really do think this might be due, at least in part, to an awful, months long relapse finally calming down.
I was diagnosed in March, had 2 rounds of solumedrol (which maybe made me a little worse for a month or two), and am going for my 3rd tysabri infusion Friday. I still have pretty bad gait and balance issues, which my dr thinks are due to spasms, and tremor. He really wants me to take baclofen, but it makes me way too sleepy and I think it makes my tremor and balance worse. I'm taking clonazepam for the tremor, and it does help a lot, but I hate the idea that it's an addictive drug. And if I take the baclofen too, the tremor comes back.
Anyway, I think maybe the ampyra 2x a day makes my balance worse, too. I forgot evening doses a few times and I really seemed to be better off the next day. I'm really too skinny (I weigh maybe 104-105 lbs, I'm 5'2) so maybe it's just too much for me?
Anyway, I know this whole post is crazy, I'm sorry for that. I'm just trying to figure out what to do. Does ampyra HAVE to be taken 2 times a day for any benefit? Is it one of those meds that have to stay constant in your system for any help or can it be taken once a day every day?
I will ask the neurologist Friday, but I just wondered if anyone here had similar issues? Thanks for any help, ideas, info or advice.
I was diagnosed in March, had 2 rounds of solumedrol (which maybe made me a little worse for a month or two), and am going for my 3rd tysabri infusion Friday. I still have pretty bad gait and balance issues, which my dr thinks are due to spasms, and tremor. He really wants me to take baclofen, but it makes me way too sleepy and I think it makes my tremor and balance worse. I'm taking clonazepam for the tremor, and it does help a lot, but I hate the idea that it's an addictive drug. And if I take the baclofen too, the tremor comes back.
Anyway, I think maybe the ampyra 2x a day makes my balance worse, too. I forgot evening doses a few times and I really seemed to be better off the next day. I'm really too skinny (I weigh maybe 104-105 lbs, I'm 5'2) so maybe it's just too much for me?
Anyway, I know this whole post is crazy, I'm sorry for that. I'm just trying to figure out what to do. Does ampyra HAVE to be taken 2 times a day for any benefit? Is it one of those meds that have to stay constant in your system for any help or can it be taken once a day every day?
I will ask the neurologist Friday, but I just wondered if anyone here had similar issues? Thanks for any help, ideas, info or advice.
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