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New results -high dose biotin
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my fingers are crossed! Thank you for this info.hunterd/HuntOP/Dave
volunteer
MS World
hunterd@msworld.org
PPMS DX 2001
"ADAPT AND OVERCOME" - MY COUSIN
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cautiously optimistic
Yes, my fingers crossed too! My UCSF doctor has been awaiting these results so I will check in with her re results. I have PPMS with walking getting more difficult though no active disease past 5 years (no inflammation on MRIs)...from reading the study sounds like this group of us may see some benefit. Stay tuned!
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Thanks for the article AP.
If I understand it correctly (read it a couple of times), MD 1003 Biotin has been shown to be very effective in treating progressive MS, without active relapses.
I'm pretty sure that the results are from the Phase III clinical trials, shown to be both a safe and effective treatment.
So.......anyone know what is next step for this to be available for us? Seems like it should get through quickly?
I do take biotin, which is included with my B-Complex, but is only a 300 mcg dosage. MD 1003 is 300 mg, which is 1000X what I am taking.
Take CarePPMS for 26 years (dx 1998)
~ Worrying will not take away tomorrow's troubles ~ But it will take away today's peace. ~
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my doctor told me that she would be more than happy to write me a prescription for it, but the insurance company denied it. the phase 3 trial was not completed yet. I will trying again.hunterd/HuntOP/Dave
volunteer
MS World
hunterd@msworld.org
PPMS DX 2001
"ADAPT AND OVERCOME" - MY COUSIN
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Originally posted by hunterd View Postmy doctor told me that she would be more than happy to write me a prescription for it, but the insurance company denied it. the phase 3 trial was not completed yet. I will trying again.PPMS for 26 years (dx 1998)
~ Worrying will not take away tomorrow's troubles ~ But it will take away today's peace. ~
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My doctor also wrote a script for it, but you don't actually need a script for this. And I found a source for $45/month's supply. I'm pretty sure a link won't survive moderation, but there's a biotin for progressive MS group on Facebook where you can find these suppliers. If you can afford it, I can't think of one rational reason not to do it. Especially since we have nothing else.PPMS
Dx 07/13
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Originally posted by hunterd View Postmy doctor told me that she would be more than happy to write me a prescription for it, but the insurance company denied it. the phase 3 trial was not completed yet. I will trying again.
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hi all,
I tried it for 6 weeks. 100mg x3 daily. compounded by good pharmacy. my energy was better, and I could sleep thru the night, without getting up to pee. infact my bladder became normal. after 4 weeks I started getting weakness when lifting my foot. I stopped and called my ms dr.. I am going to restart in a couple weeks. my doc is going to have me take 50mg x6 daily, to give me a better response. questions have been raised as to whether medday is using a extended release formula. I am ppms and 66 year old.
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Originally posted by barryrado View Posthi all,
I tried it for 6 weeks. 100mg x3 daily. compounded by good pharmacy. my energy was better, and I could sleep thru the night, without getting up to pee. infact my bladder became normal. after 4 weeks I started getting weakness when lifting my foot. I stopped and called my ms dr.. I am going to restart in a couple weeks. my doc is going to have me take 50mg x6 daily, to give me a better response. questions have been raised as to whether medday is using a extended release formula. I am ppms and 66 year old.
Increased energy, good sleep, and normal bladder sounds fantastic.
Best of luck to you when you restart the 50mg 6X daily, and let us know how it goes.
Take CarePPMS for 26 years (dx 1998)
~ Worrying will not take away tomorrow's troubles ~ But it will take away today's peace. ~
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Originally posted by barryrado View Postquestions have been raised as to whether medday is using a extended release formula.
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Originally posted by J-Bo View PostMy doctor also wrote a script for it, but you don't actually need a script for this. And I found a source for $45/month's supply. I'm pretty sure a link won't survive moderation, but there's a biotin for progressive MS group on Facebook where you can find these suppliers. If you can afford it, I can't think of one rational reason not to do it. Especially since we have nothing else.
Thanks
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