The doctor shot 50 mcg right into my spine and it did absolutely nothing! This was very disappointing since leg spasticity is quickly rendering me immobile. Oral baclofen has always had a mild effect on me (except for side effects). The doctor says he'll next try a 75 mcg dose. I'm concerned I may be one of those people who do not respond to ITB. Anyone else require more than one test dose of ITB?
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I failed my Baclofen Pump Test.
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Hi Brad,
I'm sorry you had no luck with the 50 mcg dose. (I did respond to the 50 mcg dose, so can't answer to needing a second screening.) I hope the 75 mcg bolus dose will work for you. An extra 25 mcg may not sound like much of an increase, but it can make a big difference because of the method of delivery. A third screening dose of 100 mcg is also possible.
Best of luck and please let us know how it goes.Kimba
“When you change the way you look at things, the things you look at change.” ― Max Planck
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Hi Brad,
That had to be a big disappointment.
I did respond to the 50 mcg bolus.
How much oral baclofen do you take?
I was nearly immobile when I opted for the pump. It helped a lot, but through the years I've had to have the dosage increased and I'm at 250 mcg. Here's hoping the larger dose does the trick.
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Originally posted by Brad1138 View PostThe doctor shot 50 mcg right into my spine and it did absolutely nothing! This was very disappointing since leg spasticity is quickly rendering me immobile. Oral baclofen has always had a mild effect on me (except for side effects). The doctor says he'll next try a 75 mcg dose. I'm concerned I may be one of those people who do not respond to ITB. Anyone else require more than one test dose of ITB?
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This has been very difficult for me. My leg spasticity problem is getting rapidly worse. 2016 started with a hobble, progressed to a cane, and ended with a walker. My neurologist recommended a test for ITB in April. For various reasons (mostly doctor related) I didn't have the test until late December. I was so hoping for relief! Now, I'm waiting for insurance approval for a second test and then a (4-6 week) wait to get onto the doctor's schedule. I'm trying to remain optimistic. But I've gone from April 2016 (this ITB thing sounds drastic and scary) to January 2017 (give me the dang pump!).
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Success
100 mcg early this morning. I thought that 100 mcg would turn me into a "wet noodle." It seemed to loosen me up a bit. The doctor said that the test was a "success" since I had responded and that the amount can be adjusted (increased) once a pump is placed. It wasn't until the baclofen wore off a few hours ago that I was truly aware that the test had been a success. STIFF AGAIN!
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Yay! You must be so relieved it was a success (and happy your doc went with the 100mcg dose).
It does take time afterward to adjust the dose, but so worth it. Please keep us updated with your surgery, and feel free to ask any questions you have. Good luck!Kimba
“When you change the way you look at things, the things you look at change.” ― Max Planck
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Originally posted by Brad1138 View Post100 mcg early this morning. I thought that 100 mcg would turn me into a "wet noodle." It seemed to loosen me up a bit. The doctor said that the test was a "success" since I had responded and that the amount can be adjusted (increased) once a pump is placed. It wasn't until the baclofen wore off a few hours ago that I was truly aware that the test had been a success. STIFF AGAIN!
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Originally posted by Brad1138 View PostPump surgery April 10th. Just back from 10 days in rehab hospital. I need to get my thoughts together...
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