Age: 20
Weight: 101lbs.
Height: 5' 4'
Sex: Female
Smoker/ Morning Coffee drinker /Alcohol intolerant
Fatigue: My fatigue has overrun my life. This started when I was 18 and continued to get worse with other symptoms. I am almost 21 and I have trouble getting up off the floor when I am having a "flare up" of my symptoms, mostly related to this weird tightness and aching pain I have starting in the back of my neck which I'll explain further down. I feel like I have the flu all the time. I feel sick and tired and I can barely hold myself up to satisfy my husband. Sometimes my body gets really weak and achy and I have to push myself out of my chair at work.
Other Chronic illnesses (worst to least): Endometriosis, IBS w/C, Reactive Hypoglycemia, Severe everyday Allergies, GERD, Asthma. All since birth except for Reactive Hypoglycemia 2013 and Endo which started in October 2014(19yo).
Neuropathy: Recently diagnosed with mild neuropathy. It started with a random burning pain in various small patches of my body all over which come and go sporadically. In my knee I had a burning pain one day, a stabbing pain the next, and a really cold patch later that day (Not just feeling, I mean physically ice cold when it shouldn't have been).
Temp Control: I feel hot/cold and have hot flashes during a "flare up" of whatever this is and then I turn the room temp 2 degrees F and I'm freezing. I cannot stand the heat. Can't do it. Had a heat stroke a few months ago which of course after that, my symptoms got indefinitely worse.
Cognitive Fuction: Declined like my debit card the day before I get paid. I use to be so smart, so sharp and keen, up until about a year ago. My IQ at 16 was 126. I feel stupid now, cant think quite as fast and I have a lot of those "du-uuhhhhh?" moments now. Sometimes it's hard to walk straight or walk at all or put my hand in the right place where I want it to go. I can walk, yeah, but not easily; my body hurts and gets too weak sometimes. And during that "mild heatstroke", I couldn't get up out of my car. Period. My speech rolls over itself and blurrs together sometimes and I'll say a completely different word than what I meant to say. Difference between paperwork and pineapple. One time my husband screamed at me "I can't understand a word you're saying; you're slurring your words!", scared the crap out of me cause I had no idea that I was doing that.
WEIRD PAIN w/ photophobia: I feel an unusual tightness and stiffness in the back of my neck accompanied by a dull ache that makes me almost cringe, travelling down my spine and branches out through the back of my shoulders above my shoulder blades and down my arms. The weird cringing ache feeling feels like in follows up over my head and is greatly affected by sunlight (photophobia) and the sunlight makes me cringe and want to crawl into a dark hole and nap for a while. The sunlight affects me the most and only bothers me when I have the pain in my neck and back. When there is no pain, sunlight in enjoyable. I feel sore and tired down my shoulders and my arms and it hurts to lift them when I feel like this. I went a week recently without feeling like this which was great, but of course as soon as I said something, it came back with a vengeance. Lasting hours to days and will usually hit in a jiff early afternoon and start to fade through the evening. But when it lasts days, the other symptoms are milder.
Swelling: My abdomen swells and bloats up when I feel like this. When I eat even a very small amount or none at all sometimes, my left side just under my ribcage will swell to the point where I sit sideways and it hurts, can barely move, I feel like it's either my spleen or pancreas cause my stomach isn't full at that time. I've had co-workers ask my if I'm pregnant but of course that's another symptom.
Infertility: Had an excruciating miscarriage at 9weeks (molar/blighted ovum) after never being able to get pregnant which began the onset of my Endo. The pregnancy was brought on by stopping Ortho Tricyclen Lo after a month of use. Since, I've had 3 early miscarriages (6weeks) and am still unable to carry a child and am no longer becoming pregnant. Been trying for 2 1/2 years now. Still before then, played with fire, never got pregnant.
Help?!
-Marlana
Weight: 101lbs.
Height: 5' 4'
Sex: Female
Smoker/ Morning Coffee drinker /Alcohol intolerant
Fatigue: My fatigue has overrun my life. This started when I was 18 and continued to get worse with other symptoms. I am almost 21 and I have trouble getting up off the floor when I am having a "flare up" of my symptoms, mostly related to this weird tightness and aching pain I have starting in the back of my neck which I'll explain further down. I feel like I have the flu all the time. I feel sick and tired and I can barely hold myself up to satisfy my husband. Sometimes my body gets really weak and achy and I have to push myself out of my chair at work.
Other Chronic illnesses (worst to least): Endometriosis, IBS w/C, Reactive Hypoglycemia, Severe everyday Allergies, GERD, Asthma. All since birth except for Reactive Hypoglycemia 2013 and Endo which started in October 2014(19yo).
Neuropathy: Recently diagnosed with mild neuropathy. It started with a random burning pain in various small patches of my body all over which come and go sporadically. In my knee I had a burning pain one day, a stabbing pain the next, and a really cold patch later that day (Not just feeling, I mean physically ice cold when it shouldn't have been).
Temp Control: I feel hot/cold and have hot flashes during a "flare up" of whatever this is and then I turn the room temp 2 degrees F and I'm freezing. I cannot stand the heat. Can't do it. Had a heat stroke a few months ago which of course after that, my symptoms got indefinitely worse.
Cognitive Fuction: Declined like my debit card the day before I get paid. I use to be so smart, so sharp and keen, up until about a year ago. My IQ at 16 was 126. I feel stupid now, cant think quite as fast and I have a lot of those "du-uuhhhhh?" moments now. Sometimes it's hard to walk straight or walk at all or put my hand in the right place where I want it to go. I can walk, yeah, but not easily; my body hurts and gets too weak sometimes. And during that "mild heatstroke", I couldn't get up out of my car. Period. My speech rolls over itself and blurrs together sometimes and I'll say a completely different word than what I meant to say. Difference between paperwork and pineapple. One time my husband screamed at me "I can't understand a word you're saying; you're slurring your words!", scared the crap out of me cause I had no idea that I was doing that.
WEIRD PAIN w/ photophobia: I feel an unusual tightness and stiffness in the back of my neck accompanied by a dull ache that makes me almost cringe, travelling down my spine and branches out through the back of my shoulders above my shoulder blades and down my arms. The weird cringing ache feeling feels like in follows up over my head and is greatly affected by sunlight (photophobia) and the sunlight makes me cringe and want to crawl into a dark hole and nap for a while. The sunlight affects me the most and only bothers me when I have the pain in my neck and back. When there is no pain, sunlight in enjoyable. I feel sore and tired down my shoulders and my arms and it hurts to lift them when I feel like this. I went a week recently without feeling like this which was great, but of course as soon as I said something, it came back with a vengeance. Lasting hours to days and will usually hit in a jiff early afternoon and start to fade through the evening. But when it lasts days, the other symptoms are milder.
Swelling: My abdomen swells and bloats up when I feel like this. When I eat even a very small amount or none at all sometimes, my left side just under my ribcage will swell to the point where I sit sideways and it hurts, can barely move, I feel like it's either my spleen or pancreas cause my stomach isn't full at that time. I've had co-workers ask my if I'm pregnant but of course that's another symptom.
Infertility: Had an excruciating miscarriage at 9weeks (molar/blighted ovum) after never being able to get pregnant which began the onset of my Endo. The pregnancy was brought on by stopping Ortho Tricyclen Lo after a month of use. Since, I've had 3 early miscarriages (6weeks) and am still unable to carry a child and am no longer becoming pregnant. Been trying for 2 1/2 years now. Still before then, played with fire, never got pregnant.
Help?!
-Marlana
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