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    Relapse/Remission Question

    Okay so I'm still in Limbo and likely have more questions than answers so far in this process of elimination.
    I'm going for an EEG next month which I'm hoping will lead to an MRI.

    I'm just wondering about something that happened recently. After months of various levels of symptoms, in particular fatigue, muscle weakness, brain fog and irritability things improved dramatically for about 8 days over the holidays. I literally felt like I was 25 again, full of energy, getting things done that had been on the back burner for ages and even going for hour long walks with my dog.

    As of about 10 days ago that all slowly started to change for the worse again. Right now a 20 minute walk twice a day is so difficult to get through. My legs feel weak and heavy and climbing hills or stairs requires real effort and assistance of the rail. Tonight my hips and knees are aching and I had to fight through my walk because my dog needs it to stay healthy.

    Is this a relapse? Were the months leading up to those 8 days of bliss a lengthy relapse that lasted more than half a year, symptoms varied from day to day but those 8 days I felt like a new person. I'm trying to figure out how to explain things to my Nurse Practitioner and the neurologist I'll be seeing in February.

    I'd also like to know if people suffer from fatigue and are also just feel tired all the time? As in I never feel fully rested after a night's sleep, even with my CPAP, and want/need to sleep late and nap all the time.

    Any help would be appreciated. Thanks in advance.

    #2
    Originally posted by LibraAngel74 View Post

    Is this a relapse? Were the months leading up to those 8 days of bliss a lengthy relapse that lasted more than half a year, symptoms varied from day to day but those 8 days I felt like a new person. I'm trying to figure out how to explain things to my Nurse Practitioner and the neurologist I'll be seeing in February.
    Impossible to know for sure but yes you could be symptomatic for that long.

    Originally posted by LibraAngel74 View Post
    I'd also like to know if people suffer from fatigue and are also just feel tired all the time?
    Affirmative
    The future depends on what you do today.- Gandhi

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      #3
      Originally posted by LibraAngel74 View Post
      I'm trying to figure out how to explain things to my Nurse Practitioner and the neurologist I'll be seeing in February.
      Hi LibraAngel74

      If you haven't done so already, document all of your symptom experiences (what, when, how long etc.), and take it with you to your appointment.

      I took two pages describing my experiences to my neuro appointment, and he told me that it was really helpful.

      Good luck!

      Take Care
      PPMS for 22 years (dx 1998)
      ~ Worrying will not take away tomorrow's troubles ~ But it will take away today's peace. ~

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        #4
        An exacerbation (relapse, flare-up, attack) of Multiple Sclerosis is a worsening of old symptoms and/or new symptoms lasting, continuously, for more than 24 hours and separated from the previous exacerbation by 30 days. If symptoms come/go that is not an exacerbation, it's simply living with MS.

        A remission in the case of Multiple Sclerosis can be complete (no symptoms) or partial (residual symptoms). Even in "remission" MS can still be doing damage to the Central Nervous System(CNS).
        Diagnosed 1984
        “Lightworkers aren’t here to avoid the darkness…they are here to transform the darkness through the illuminating power of love.” Muses from a mystic

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          #5
          Thank you

          Thanks for the help guys.

          Today was a really bad day for walking...amd stairs...ugh stairs. I just don't understand how I can go from so many issues for months then 8 days of amazing energy and few struggles with my list of symptoms and now today after a steady progression I feel like I need an assistive device just to get from the street to my apartment on the 2nd floor, no elevator.

          There are, as my NP says, so many things that could be causing these symptoms.

          And everything is taking so long to see specialist's and get test results. I'm stressed to the max and I know it's not helping things.

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