Went to neuro appt . recently . Originally dx was PPMS but learned its SPMS . considering entering a study using high dosage Biotin . Most info from forum is at least 2 yrs old . Any recent pros and cons about Biotin . Thanks .
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Originally posted by rbnhd21 View PostWent to neuro appt . recently . Originally dx was PPMS but learned its SPMS . considering entering a study using high dosage Biotin . Most info from forum is at least 2 yrs old . Any recent pros and cons about Biotin . Thanks .
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Originally posted by rbnhd21 View PostWent to neuro appt . recently . Originally dx was PPMS but learned its SPMS . considering entering a study using high dosage Biotin . Most info from forum is at least 2 yrs old . Any recent pros and cons about Biotin . Thanks .
Here is a fairly recent (May 17 2017) article from the National MS Society about the high-dose biotin (MD1003) clinical trials:
http://www.nationalmssociety.org/Abo...ing-for-St-(2)
I think we'll have better info on the pros and cons of high-dose biotin when the Phase III(?) trial results are made available.
MD1003 uses a pharmaceutical grade high-dose biotin, with other components. Not sure if regular compound pharmacies can replicate the same, so anectdotal pros/cons from others might not be accurate?
In any case, good luck if you decide to participate!
Take CarePPMS for 26 years (dx 1998)
~ Worrying will not take away tomorrow's troubles ~ But it will take away today's peace. ~
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