I'm having another flair of Allodynia pain as a result of Transverse Myelitis. I take Hydrocodone for knee and hip joint pain and lumbar DDD. The current dose of hydrocodone is low dose and insufficient to cover the allodynia pain. I have used one additional dose daily during this flair but have been running out before I'm due for a refill. I'm also treatment resistant for most other off label pain meds due to intolerance or allergy. In the current opioid hysteria treating pain otherwise resistant to treatment appears to be a losing battle at this point.
Allodynia has periods of active sx, and mine seems to be triggered in cool weather, but can also be triggered by touch from my bed linens, menthol from tooth paste falling on my hands and a Lydocaine Patch applied to treat lumbar ddd pain can cause the skin on my body to erupt in burning pain. I recently consulted a pain management doc recommended by my pcp to better manage all of my pain issues.
First off the doc was parcular?, making odd facial expressions, squinting eyes. Concerning, yes, not what I needed. Things went down hill from there. Doc challenged me about lydocaine pain patches triggering allodynia on my skin, asking why didn't Novocain in my mouth trigger it? said I'm your below average idiot, I don't know other than allodynia is related to skin, versus the mouth. It wasn't until I got home that it occurred to me that I brush my teeth 3 times a day which doesn't cause a pain trigger, but tooth paste falling on my hands does. duh.
We went through past drug intolerance and allergic reactions. Keep in mind I'm really trying my best to over look the extremely odd behavior, am I being pranked or could it be a sign of mental health issue?
After some deliberation I decided to fill the rx and had a breathing problem similar to other meds.
I searched a blog associated with doc PM practice. Found a youtube under doc's name about one of the most awful family tragedies ever involving the suicidal death of doc's 2 young adult children due to bipolar disease. Awful and tragic as that is it did offer a possible explanations for the doc's odd behavior.
Here I am in pain and unable to sleep, feeling pretty bad about myself for being under suspicion again. Could use some encouraging words and would also like to hear from other with similar history either TM, Allodynia, a weird doc story even.
Take Care
Allodynia has periods of active sx, and mine seems to be triggered in cool weather, but can also be triggered by touch from my bed linens, menthol from tooth paste falling on my hands and a Lydocaine Patch applied to treat lumbar ddd pain can cause the skin on my body to erupt in burning pain. I recently consulted a pain management doc recommended by my pcp to better manage all of my pain issues.
First off the doc was parcular?, making odd facial expressions, squinting eyes. Concerning, yes, not what I needed. Things went down hill from there. Doc challenged me about lydocaine pain patches triggering allodynia on my skin, asking why didn't Novocain in my mouth trigger it? said I'm your below average idiot, I don't know other than allodynia is related to skin, versus the mouth. It wasn't until I got home that it occurred to me that I brush my teeth 3 times a day which doesn't cause a pain trigger, but tooth paste falling on my hands does. duh.
We went through past drug intolerance and allergic reactions. Keep in mind I'm really trying my best to over look the extremely odd behavior, am I being pranked or could it be a sign of mental health issue?
After some deliberation I decided to fill the rx and had a breathing problem similar to other meds.
I searched a blog associated with doc PM practice. Found a youtube under doc's name about one of the most awful family tragedies ever involving the suicidal death of doc's 2 young adult children due to bipolar disease. Awful and tragic as that is it did offer a possible explanations for the doc's odd behavior.
Here I am in pain and unable to sleep, feeling pretty bad about myself for being under suspicion again. Could use some encouraging words and would also like to hear from other with similar history either TM, Allodynia, a weird doc story even.
Take Care
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