Dizzy beyond belief

[hunterd]

lately I have been incredibly dizzy. I currently take meclizine for this and the dose not seem to work for very long. Two hours after I take a pill I am dizzy again.has anyone else experienced this, and what did you do? If you are currently taking meclizine, what is your dosage?

[Kimba22]

lately I have been incredibly dizzy. I currently take meclizine for this and the dose not seem to work for very long. Two hours after I take a pill I am dizzy again.has anyone else experienced this, and what did you do? If you are currently taking meclizine, what is your dosage?

So sorry, hunterd. Unfortunately, I can relate. It sounds like you've developed a tolerance for the med. 25 mg is prescribed for me, along with Valium, but might as well be taking a Tic Tac anymore. I only take med as a last resort, hoping it might have an effect. :-) I know I should check into vestibular therapy, but as I understand, doesn't help with CNS dizziness. Have plenty of lesions in my brain stem, but never had the tilt table test to see if I also have benign paroxysmal positional vertigo (BPPV). So tired of tests.

All I can do is wait them out. I try not to look at anything close when they hit, that only seems to makes it worse.

Talk with your neuro, maybe the meclizine dose can be upped? Hope you are feeling better.

[hunterd]

I am only taking 12.5 mg of mecliziine so I do have some room left. And I see my neurologist next Monday!

The only thing that makes my dizzies go away is to look at one unmoving point.

Oh well, we will see next week.

[22cyclist]

Huntered, I too have lots of brainstem lesions and my neuro prescribed Valium at 10 mg per day so I can divide it as needed they are into 2 mg tabs, so I can titrate up or down as I feel is needed. I need it every day just to get out of bed and try to function, but sometimes I just save up and take them all at night because closing my eyes makes my dizziness worse 10 fold!

I stopped the Antivert. My MS specialist told me that the only things that treats CNS dizziness are Valium (diazipam) and Ativan (Lorazepam).

Take care
Lisa

[wholenewworld]

I can totally relate. I have dizziness SO bad my 12 year old son had to help me walk. Even with help, I was stumbling like a drunken fool. I tried the Meclizine and Zofran, neither helped. The only thing that would help me was sitting there with one eye closed (or a make shift eye patch). I lost 10 pounds in one week due to the vomiting from the dizziness and not being able to eat.

Everywhere I have read echoed what Lisa said, Valium is usually what helps. If you have wiggle room with your pills, have you tried to double the dose? So sorry you are going through this. It's awful for sure.

[hunterd]

thank you allfor your answers. I go to the neurologist next Monday, and this is is item number one on my list.

[loopey]

Nothing Helps Me

I have been dizzy all day every day for over 3 years. Sometimes it is worse and sometimes it is just bad. I have tried Valium to no avail. I have been tested and it is CNS dizziness and 2 MS neurologists have told me there is nothing they can give me for it. Hunterd if your neuro gives you another suggestion I see my neuro in a couple of months and will ask him about it. I'll also ask about the drugs you already mentioned. I hope he gives you something that works. It is miserable.

[Tia1]

Hi Hunterd, I hope that your doctor has some other options medication wise for you. I'm praying for you.

[Lyndagail]

Dizziness problems

I read your post and a few thoughts came to mind. First of all, sincere best wishes for you as you endure this.

Some of the new anti-vertigo drugs come in a patch form and this gives a more controlled release of the medication.

Maybe you should see an ear, nose and throat specialist just to rule out any other problems that may be contributing.

I took a drug called Serc (betahistine) but I was having quite a bit of nausea with the dizziness.

[poohb3ar]

so sorry

you've join the ditzy (oops! dizzy) club, buddy!

it's not fun. my granddaughter (she's 3 1/2, hard to believe) is with us for a few weeks. she wanted to know why i kept bumping into things, sitting down suddenly, etc.

i've been dxd with neurological vertigo which until recently 5 mg valium 3-4x day has kept mostly under control. it used to affect only my walking. now, there's no rules

i fell off my wii balance board (thankfully i do it in front of couch)!
sitting on couch folding clothes it was like a wave tried to knock me down. it would have, had i not been sitting.

plenty of other random times that are getting more frequent and worse. it's almost getting to the point that i'm worrying about driving. i can't look away at all from the windshield. (i knocked off a neighbors' mailbox while adjusting mirror AND DH WAS IN THE CAR!!!!!!!!!!!!!!!)

kimba, english please on all those letters of tests. i know mine has nothing to do with my ears.
Dr. Hunter didn't give it a name, just Neuro damage vertigo. I did 2 days of tests. probes on my head while i watched a computer screen and about hit the floor with all the spinning circles, colors, etc. plus several others i don't know what they were called.

it is the only dx that other neuros don't argue about when i go to them. several have decided i don't have MS- funny, i don't feel any different. shouldn't it all just poof go away when they say that?

I'm changing neuros because mines a moron.

hopefully my headache neuro who has worked miracles for my migraines is considering being my whole body neuro. i'm praying she will, she's very smart and explains stuff so i understands it. answers emails, etc.

whoa, my english is getting poor. that's another thing, i'm losing recall, memory, etc worse than ever. don't know what i'm going to do. read where migraines shrink the brain. i'm worried= after brain surgery in 07 i'm not sure there's much left!

hunterd, praying you get relief. can't imagine vertigo in an elec wc. i'm about to have to pull out the rollator or i'm going to fall and really hurt myself.

just wanted everything to be perfect with my grandgirl staying with us for a few weeks. DH is talking about taking her home early because i can't handle it that would be horrid. i hate my body!
i've counted the days til she got here. seeing her has kept me going for several months.

thanks for asking the right question and all the good advice ya'll. please help me understand what i can do to make it better.
i'm home from church while he took her by himself. i have vertigo/ migraine right now.

moron neuro is out of country (right after denying my RX for valium 2x!) thank God, my migraine neuro got me an emergency supply.

any other answers or clarifications of the different kinds? i know it's not vestibular, only Dr. Hunter saw the faint brain stem lesions. the others now that are lit up are migraine related. so i just really don't know a thing.

thanks ya'll, you're the best!

take care and God bless ya!
poohb3ar

[hunterd]

I wish I could offer some advicethat would help everyone, but all I know is meclizine which has already been discussed. I hope that you all have some luck with the "dizzies ""

[jeannef1]

I wish I could offer some advicethat would help everyone, but all I know is meclizine which has already been discussed. I hope that you all have some luck with the "dizzies ""

I know this won't help everyone but I wear a cervical collar during dizzy episodes and at least I'm not nauseous or vomiting