sitting on bed of nails... what to do

[melissa138]

I honestly don't know where to turn.

Quick rundown: MS 25 yrs, wheelchair permanently last 6, still live at home, no use of legs or left arm. My power chair does have tilt/recline.

Long story short, I'm so uncomfortable and in pain sitting in my chair I can barely stand it. I lean forward every 45 sec or so throughout the day to relieve pressure. Right now I'm sitting on a donut because it's been the most tolerable thing I've tried. Tilting back only provides temporary relief. I'm sitting on a J2 Deep Contour. I ordered a new cushion - I was thinking Roho, but my tech steered me away because he says they're problematic - I got one that's supposed to be good for pressure relief (foam/gel/memory foam combo) that didn't help at all. I'm working with an OT but I don't know if anything will come of that.

any thoughts or ideas would be appreciated
melissa

[RonPaulaD]

Hi Melissa, Don't have any advice or suggestions, but want to let you know that I'm hoping for the best for you. The pain seems to be the worse symptom.

Paula

[golfore]

Hi Melissa,

I feel your pain. Oops, never mind, I have enough of my own.

Sorry about that, no harm intended. Maybe you can even find a way to chuckle at it.

I pray you can get some relief soon. I'm a 25+ year ms'er that, until a couple of years ago, never had to deal with any pain issues or serious M.S. problems. I have horrible pain in my hands and feet that require lots of Gabapentin. I wish I could help you.

Hang in there, things will get better. I hope I didn't anger you, it was not intended.