I've been dealing with vertigo for just over a year now. For the first 6 mos it was manageable, multiple episodes daily but short & mild. Last May it increased in frequency & intensity and has been severe & constant for a few weeks. MRI of my brain shows a lesion on the nerves leading to my right inner ear so my MS specialist says it's MS related and I did IV steroids last week, am now on the oral taper. I only felt a bit of improvement for 2 days, I'm back to the strong constant sensation. I've lost my ability to drive so my sense of independence is gone. I just want my old life back!! My doc said if the steroids don't help, it could be permanent. Is anyone else experiencing this??
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Possible MS 1993, RRMS, Dx 2007, SPMS 2013. Avonex - Oct '07 - Jul '12, Gilenya - Sept '12 to May '13, Tecfidera - June '13 to present. You see things as they are and you ask why..I dream of things that never were and I ask 'Why Not?!' -
Hi curious1! Please check my post to KatieAgain . I described a surgical approach that I had done. Only to be done as a last resort. Here's hoping you don't need it!
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Thanks Picture Me
I read your post. Interesting & food for thought. One question...has the surgery altered your hearing in that ear?Possible MS 1993, RRMS, Dx 2007, SPMS 2013. Avonex - Oct '07 - Jul '12, Gilenya - Sept '12 to May '13, Tecfidera - June '13 to present. You see things as they are and you ask why..I dream of things that never were and I ask 'Why Not?!'Comment
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Oh dear, sorry for what you are going through. Your post caught MY eye as I was having dizziness moving my eyes. It used to be looking up, but eventually got bad enough it was up, down and sideways. I would get a wave of nausea with it and unsteadiness.
BUT one of my MS neuro's ordered Vestibular PT therapy. It worked! Didn't seem to right away, but you keep doing these simple exercises and finally things started to coordinated!
The PT therapist said if you don't keep doing the exercise you can lose the benefits. She was one of two trained to do this kind of therapy. So make sure the person has had the proper training.
And she said the purpose is to get your brain CNS, your inner ear and your FEET to connect to each other, via nerves and start improving.
You may want to try it, its helpful and it eventually kicked in.
Good luck! I know how much I hated being dizziness all the time.
JanI believe in miracles~!
2004 Benign MS 2008 NOT MS
Finally DX: RR MS 02.24.10Comment
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Hi curious one! To answer your question I have no hearing loss. I do worry about falling and cracking the old egg like Humpty Dumpty though. They suggested I wear a helmet for active sports. Yeah like I'm up for that. Sometimes I don't have the energy to get out of bed! Good luck.Comment
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Vertigo
Yes I have had it for 6 months and it is what led to my diagnosis. I am supposed to return to work in January but if this vertigo doesn't subside, idk. It's horribleOriginally posted by Curious1 View PostComment
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Sorry you are going through this so long. Have you been evaluated by a PT therapist who is certified in Vestibular therapy? It really helped my dizziness whenever I moved my eyes. I have not been dizzy since. Get an eval order from your Neuro and see if you improve in time for work. Good luck!Originally posted by fbwill88 View Post
I believe in miracles~!
2004 Benign MS 2008 NOT MS
Finally DX: RR MS 02.24.10Comment
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besides that PT I take meclizine for my vertigo, and it has really helped.hunterd/HuntOP/Dave
volunteer
MS World
hunterd@msworld.org
PPMS DX 2001
"ADAPT AND OVERCOME" - MY COUSINComment
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I wear a foam cervical collar when this happens and it really helps!Originally posted by hunterd View PostComment
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Yes; what mjan says. A physical therapist with some knowledge in Vestibular Therapy greatly helped me too. Was able to give me exercises to do reguarly until I could "train my brain to tolerate" the movements that triggered my dizziness. My PT had only taken one class in vestibular therapy; she wasn't certified in it, but was willing to go back and re-read her textbook and do what she knew how to do. It changed my life.Originally posted by mjan View Post~ Faith
MSWorld Volunteer -- Moderator since JUN2012
(now a Mimibug)
Symptoms began in JAN02
- Dx with RRMS in OCT03, following 21 months of limbo, ruling out lots of other dx, and some "probable stroke" and "probable CNS" dx for awhile.
- In 2008, I was back in limbo briefly, then re-dx w/ MS: JUL08.
- Betaseron NOV03-AUG08; Copaxone20 SEPT08-APR15; Copaxone40 APR15-present
- Began receiving SSDI / LTD NOV08. Not employed. I volunteer in my church and community.
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Hi, vertigo was one of my presenting symptoms. During relapses, it's really severe. Day to day, a small change in my visual field starts me dry heaving and puts me off balance. I have tinnitus and hearing loss in my left ear all related to a pontine lesion. As others have said vestibular PT does help. It retrains your brain so to speak. When I started it, I couldn't last a half a minute before dry heaving, nystagmus, etc but progressed to being able to watch a changing diagram in front of me for several minutes without symptoms. That was huge.
It's worse again now for me. I am going to see an otoneurologist at MGH in a couple of weeks to see if there's any options. Can update you then.Comment
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