If you are set up with a service organization like PVA or DAV contact them for assistance, my PVA rep said that is what he is there for to help us in any shape or manner he can including getting us the care we need. He is in contact with the Tysabri infusion center nurses on a reg basis and if they tell him someone is having problems as some of you have he jumps right on it for them.
He went to bat for me on my mileage payments, they were paying from zip code to zip code, problem being as I live out in the country a little I am not even in the same county as my post office and actually live 23 miles from it, so I was loosing out on 46 miles, as the zip to zip was 22 miles I actually doubled my payment, he made one call to mileage supervisor and they said no, his next call was to facility director and it was taken care of in about 15 min.
He went to bat for me on my mileage payments, they were paying from zip code to zip code, problem being as I live out in the country a little I am not even in the same county as my post office and actually live 23 miles from it, so I was loosing out on 46 miles, as the zip to zip was 22 miles I actually doubled my payment, he made one call to mileage supervisor and they said no, his next call was to facility director and it was taken care of in about 15 min.
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