It had been almost exactly 9 years since I started Tysabri. There is no way to know what would have happened if I had stayed on an ABC drug or done nothing. I have progressed but there have been no new lesions in my brain.
Monday I went for my Tysabri treatment and the nurse had a very hard time finding a vein and the IV fell out before the treatment was finished. The nurse wrote my Neurologist and I messaged him also. Like a dumb dumb I wrote “the only option I see now is to put a pic line in and start Ocrevus” (I have learned over the years that telling a doctor what you want is a perfect way to never get it).
How can I get myself out of this corner I have put myself in? My neurologist responded by saying I need to make an appointment with a nurse to discuss my options. I made the appointment but am furious that I am being put through these road blocks. Living in a small town doctors have a monopoly. We are at their mercy. And they can get really belligerent. Where I was before I never had to come out and say what I wanted because I knew I would be given the choice. And I knew the choice I wanted would be on the table.
I never thought I would get in this situation, that I would always find leverage to move forward. But now?
Monday I went for my Tysabri treatment and the nurse had a very hard time finding a vein and the IV fell out before the treatment was finished. The nurse wrote my Neurologist and I messaged him also. Like a dumb dumb I wrote “the only option I see now is to put a pic line in and start Ocrevus” (I have learned over the years that telling a doctor what you want is a perfect way to never get it).
How can I get myself out of this corner I have put myself in? My neurologist responded by saying I need to make an appointment with a nurse to discuss my options. I made the appointment but am furious that I am being put through these road blocks. Living in a small town doctors have a monopoly. We are at their mercy. And they can get really belligerent. Where I was before I never had to come out and say what I wanted because I knew I would be given the choice. And I knew the choice I wanted would be on the table.
I never thought I would get in this situation, that I would always find leverage to move forward. But now?
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