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    MRI frequency

    Hi
    I am on my 99th infusion and am JCV negative. I was wondering how many MRI's people get and how often. I have 2 doctors giving me different recommendations. Thanks a bunch

    #2
    I am in 7th year on Tysabri, so a little behind you. Still JCV negative. Get tested every 6 months for that and MRI annually.
    Kathy
    DX 01/06, currently on Tysabri

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      #3
      I am beginning my 8th year, 100 infusions, jc-, and since all my MRIís have been stable, this will be my first year with no MRI. I will only have to get one if I have new symptoms or a radical change in my condition. Yay!

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        #4
        I have almost completed 12 years on Ty My JCV test has been .22 pretty consistently for about 1 year. My Dr has me getting MRIs every 6 months probably because I am not negative I would rather get them less frequently ..oh well.
        Linda

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          #5
          Originally posted by dra4lfe View Post
          Hi
          I am on my 99th infusion and am JCV negative. I was wondering how many MRI's people get and how often. I have 2 doctors giving me different recommendations. Thanks a bunch
          Iíve been on Tysabri 14 years almost. I am a unique case because my neurologist also has MS and is on Tysabri. This drug is amazing and I owe the achievements and great things in my life to it. At 25, I had a relapse every month for 13 months and was contemplating filing for disability. This drug has changed my life for the better. Havenít had an MRI for four years. Having one done soon. If you are doing well and have no issues my doc doesnít obessess over it. Iím perfectly fine considering the circumstances.

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            #6
            I have not had an MRI in 3 years

            I have a neurostimulator, which is metal in my abdomen so I can eat. So no MRI. But I have not had any flares. I have no idea what is going on with my brain right now...maybe that is best. 🌹🌹🌹
            Katie
            "Yep, I have MS, and it does have Me!"
            "My MS is a Journey for One."
            Dx: 1999 DMDS: Avonex, Copaxone, Rebif, currently on Tysabri

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              #7
              Originally posted by Staralara911 View Post
              If you are doing well and have no issues my doc doesnít obessess over it. Iím perfectly fine considering the circumstances.

              Hi Staralara911,

              Great name! & welcome to MSW,

              My neuro does not push for a recurring scheduled MRI either. Again PPMS & age probably factor in.

              Like you, I'm perfectly fine without them. Less to stress over. Glad you are doing well!

              Others (RRMS) will add their opinions, again welcome!

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                #8
                Hi Staralara911 and welcome to this great site

                I am now on Ty for almost 13 1/2 years, starting when I was approx 30+years older than you were I, too, give thanks for it giving me my QOL of life For a few years I get my infusions every 56 days.

                I wish us all Blessings!
                Linda
                Linda

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