Hi everyone,
I know this topic has been discussed, and I did read through past posts about the rebound effect. There are enough stories to know it's real. My story isn't much different. Three months after stopping and my symptoms are all heightened.
I was on tysabri for 6.5 years and stopped October 2015 because my neuro thought I may have reached SPMS. The plan at my last appointment was to have an MRI after 4 months (happening in 2 weeks) and possibly start aubaugio if the MRI showed inflammation.
I asked about steroids and was told it wouldn't help.
My question are:
Have steroids helped you through the tysabri rebound effect?
Did you "recover" from the rebound effect symptoms?
I just don't know what to do, if anything. My neuro is an 8 hour drive away, so I can't just go tomorrow. My family doctor is willing to help.
I'm feeling terrible. Arms and legs are weaker than ever. Any advice or words of wisdom appreciated. Thanks!
Stacey
I know this topic has been discussed, and I did read through past posts about the rebound effect. There are enough stories to know it's real. My story isn't much different. Three months after stopping and my symptoms are all heightened.
I was on tysabri for 6.5 years and stopped October 2015 because my neuro thought I may have reached SPMS. The plan at my last appointment was to have an MRI after 4 months (happening in 2 weeks) and possibly start aubaugio if the MRI showed inflammation.
I asked about steroids and was told it wouldn't help.
My question are:
Have steroids helped you through the tysabri rebound effect?
Did you "recover" from the rebound effect symptoms?
I just don't know what to do, if anything. My neuro is an 8 hour drive away, so I can't just go tomorrow. My family doctor is willing to help.
I'm feeling terrible. Arms and legs are weaker than ever. Any advice or words of wisdom appreciated. Thanks!
Stacey
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