I had to stop Ty in Dec. because of a high titer number(3.5).
After a discussion with my Neuro and infusion nurse, we decided my risk for PML was too high, although they left the decision up to me.
I can say now I should have never stopped. I quickly got much worse even though I started taking daily pills, and shots each month.
For those who are thinking of a change, give it a second thought. I am looking at starting Ty again, but it depends on what my blood test shows. I might not be able to do Ty again. I will go to 8 weeks, and a MRI before each infusion for my Neuro to check first.
It won't fix the damage, but I hope to stabilize things again.
After a discussion with my Neuro and infusion nurse, we decided my risk for PML was too high, although they left the decision up to me.
I can say now I should have never stopped. I quickly got much worse even though I started taking daily pills, and shots each month.
For those who are thinking of a change, give it a second thought. I am looking at starting Ty again, but it depends on what my blood test shows. I might not be able to do Ty again. I will go to 8 weeks, and a MRI before each infusion for my Neuro to check first.
It won't fix the damage, but I hope to stabilize things again.
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