Hi all,
I had my 3rd tysabri infusion today. I came home from the infusion and worked on the computer for about 1-2 hours. When I got up, walking felt funny. My initial observation was that it seemed to take some effort more than normal to just propel my legs forward. (Not a ton of effort, but 'different'). I've pretty much been in bed for the evening. I just got up and walked around for a little bit, and my first thought was it feels like there is more gravity or a force pushing down on me when I am walking than I normally feel. Then it came to me that the description is probably what people talk about when they say their legs feel like lead or leaded down. I haven't really experienced this before--prior to tysabri or during infusion 1 or 2.
Has anything like this happened with any of you when recently getting your infusion. I'm hoping the feeling is gone in the morning, but I just wanted to see if anyone had any similar experiences or input. I realize it could be totally independent of the tysabri. It could be a psuedo-exacerbation or more fearfully a real exacerbation. I will monitor it and call my NEURO in 24 hours if it is still happening. (On a side note, this week prior to getting the tysabri infusion, I have felt more tired and much less motivated to get non-essential things done). I figure that could be the tiredness people get the week before tysabir - or- it could be tiredness leading into a relapse??? I just was diagnosed with MS in March of this year (2015), so I'm still trying to get a handle on what's what that's happening with me.
Thanks.
I had my 3rd tysabri infusion today. I came home from the infusion and worked on the computer for about 1-2 hours. When I got up, walking felt funny. My initial observation was that it seemed to take some effort more than normal to just propel my legs forward. (Not a ton of effort, but 'different'). I've pretty much been in bed for the evening. I just got up and walked around for a little bit, and my first thought was it feels like there is more gravity or a force pushing down on me when I am walking than I normally feel. Then it came to me that the description is probably what people talk about when they say their legs feel like lead or leaded down. I haven't really experienced this before--prior to tysabri or during infusion 1 or 2.
Has anything like this happened with any of you when recently getting your infusion. I'm hoping the feeling is gone in the morning, but I just wanted to see if anyone had any similar experiences or input. I realize it could be totally independent of the tysabri. It could be a psuedo-exacerbation or more fearfully a real exacerbation. I will monitor it and call my NEURO in 24 hours if it is still happening. (On a side note, this week prior to getting the tysabri infusion, I have felt more tired and much less motivated to get non-essential things done). I figure that could be the tiredness people get the week before tysabir - or- it could be tiredness leading into a relapse??? I just was diagnosed with MS in March of this year (2015), so I'm still trying to get a handle on what's what that's happening with me.
Thanks.
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