Thank you Myoak. Gives me more questions we can put in here even though I know you're away for a while. I'm putting them down while I think of them.
The people who recovered from PML, do you know if they were part of a study or had special access to experimental treatments? Every source I read it that PML said that it was fatal or caused severe disability and there was no known treatment. I did read about some studies where treatments were tried but or unsuccessful. You seem to know some inside information about this.
So basically my question is, if I should get PML does that mean that I would have treatment available to me in the new ordinary own healthcare setting? What do I have to be some special patient in a study in New York were some big city?
I also read that taking steroids before, during, or after treatment with Tysabri increases your risk of developing PML. So if I had a flareup while taking it then it would be really risky to have treatment for the flareup?
So scary.
The people who recovered from PML, do you know if they were part of a study or had special access to experimental treatments? Every source I read it that PML said that it was fatal or caused severe disability and there was no known treatment. I did read about some studies where treatments were tried but or unsuccessful. You seem to know some inside information about this.
So basically my question is, if I should get PML does that mean that I would have treatment available to me in the new ordinary own healthcare setting? What do I have to be some special patient in a study in New York were some big city?
I also read that taking steroids before, during, or after treatment with Tysabri increases your risk of developing PML. So if I had a flareup while taking it then it would be really risky to have treatment for the flareup?
So scary.
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