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    #1

    Ty & melatonin

    Hey guys,

    I've dealt with insomnia since I was a teenager, sedatives don't work, only med that worked was zopiclone, its psychoreactive.

    My GP has had me try a few sleeping meds but they haven't worked. He wants to avoid zopiclone because it did cause stomach problems so he recommended melatonin. Since this is non-prescription and natural I didn't bother informing the Ty rep for the first time. I didn't consider it an actual med.

    So I was at an MS Soc meeting and mentioned it and they said I really should check. I emailed the rep and for the first time he didn't have a straight away 'good to go' response, he has to check with my neuro.

    I'm kind of worried because I was told it can increase immune system and MS is an autoimmune disease and Ty is an immune suppressant. I've already taken it 5 nights but not the last or tonight.

    Is there anything I should be looking out for?



    In other news, I've had 2 infusions and I'm feeling good! The sx are actually staying hushhush, and more than one at a time! Too early to be Ty?

    And since my neuro said I won't have normal remissions because I have all the symptoms at once and am pretty much always relapsing... Well, I guess this is my first real remission.

    As she put it I have all the symptoms, so give me ALL the remissions hahaaaaa.
    Sx start May '13 | Dx'd Dec '13 | Tysabri Feb '14 [Neuro's call&saved my life]
    Just because we don't feel flesh, doesn't mean we don't fear death
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    #2
    I read somewhere (unfortunately don't remember where) that people on Tysabri shouldn't take melatonin. Since it didn't seem to help me, I had no problem giving the rest of the bottle to a friend.

    I have great success with Advil PM. One tablet and I'm good to go for the night.

    I've been very happy with Ty; I believe #50 is tomorrow! It took me 6 months before I began to notice anything concrete, but it varies from person to person. I'm so happy you're having great success.

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      #3
      Well, I've got no problem with no melatonin. From what I've heard about it it seems like a long shot.

      And I'm not sure if I should hope its the Ty or not. Almost everything is less but still there, even some new stuff and things from 6+ months ago came back, both less.

      I kind of hope its not the Ty because I feel like I'm so close to... Almost normal. Vertigo be gone and I think I can go completely cane free. In time.
      Sx start May '13 | Dx'd Dec '13 | Tysabri Feb '14 [Neuro's call&saved my life]
      Just because we don't feel flesh, doesn't mean we don't fear death

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        #4
        I see a super smart MS specialist at my medical school -- used to be at Johns Hopkins. He suggested the melatonin. I trust everything he says. Always up on the latest literature.

        It worked well for awhile. I also lost a bunch of weight (10 lbs). Not sure why.

        Comment

          #5
          There are those who theorize that Ty and melatonin are not compatible but I doubt if it is much different than other supplements; individual response would account for effectiveness or side effects.

          My wife with MS took 3mg of melatonin for 5 years then cut back to 1mg the last two years. Although the dose is very low it seems to help her sleep better and she experiences no known side effects.

          She has been on TY the entire time. First infusion was 2002.

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            #6
            Well, I had pretty much decided no. The Ty rep emailed me back today and said my neuro says it there is no risk.

            I'm popping melly. Yes, I'm calling it that. I'm kool and that's what kewl people say. Trust me. You heard it from a koolkid
            Sx start May '13 | Dx'd Dec '13 | Tysabri Feb '14 [Neuro's call&saved my life]
            Just because we don't feel flesh, doesn't mean we don't fear death

            Comment

              #7
              Ha!

              Not on Ty, but melatonin does help me. I especially noticed the effects after I quit a fatique med in February. 15-30 mins and I am sleepy. Zzzzzzzzz

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