I was recently in a flare that brought me to my knees and honestly, I did not think I was ever going to come out of it.
I was between DMDs, which was a huge mistake on my part, waiting for Tecfidera. Anyway, more bad than good seems to be coming out of the Tecfidera Thread. So, I am probably doing something, I said I never would do and that is go on TY at least until things get ironed out with the meds...I know there are a couple more in the pipeline. I am JCV-, for now and I meet with my new neuro team next week and I have already been told they are recommending TY.
But I do have a concern. Several posters have mentioned bad things happening to them when they stop TY? Some kind of withdrawl effect? Could someone please elaborate. For example, I am 50 years old today, and if I was taking TY, would I be a 90 year old in a 50 year old body? Or is TY possibly addictive...what is causing that withdrawal effect?
Thanks
I was between DMDs, which was a huge mistake on my part, waiting for Tecfidera. Anyway, more bad than good seems to be coming out of the Tecfidera Thread. So, I am probably doing something, I said I never would do and that is go on TY at least until things get ironed out with the meds...I know there are a couple more in the pipeline. I am JCV-, for now and I meet with my new neuro team next week and I have already been told they are recommending TY.
But I do have a concern. Several posters have mentioned bad things happening to them when they stop TY? Some kind of withdrawl effect? Could someone please elaborate. For example, I am 50 years old today, and if I was taking TY, would I be a 90 year old in a 50 year old body? Or is TY possibly addictive...what is causing that withdrawal effect?
Thanks
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