I had infusion # 38 last March. I had had numerous bad infections, pneumonia, toe infection, sinus infections, and acute pancreatitis so my MS specialist and I decided I needed a 6 month break from Ty starting in April.
I had major, major surgery, a Whipple for chronic pancreatitis, on July 23. They removed the head of the pancreas which was dead, the gall bladder, half the common bile duct, more than 1/2 of my stomach, and a portion of my small intestines. I survived, needless to say, and have been recovering from this event which is no small task.
Thirty pounds lighter now and feeling to be in good health, I am now facing the decision tomorrow of whether to go back on Ty. I have had minor problems with MS during my recovery but for the most part am feeling better than I have in 5 years. I am still JC virus + and I took Avonex as my first MS drug 15 years ago with a 5 year wait before trying a very short try at Beta, allergic. I had a 3 year wait before starting Ty after a 1 month try of Beta.
I have done super on Ty and love that there have not been any no lesions this whole time as of last April, last MRI. My question is there any evidence about how you can expect to respond after a 6 month vacation from TY? Also, any evidence of a greater PML occurence after such a vacation.
I don't want to do something stupid with my life now that I am pain free, abdominal pain, for the first time in 5 years and starting to love my life again. Thanks for putting up with the long post but felt you needed all the info to give a good opinion.
I had major, major surgery, a Whipple for chronic pancreatitis, on July 23. They removed the head of the pancreas which was dead, the gall bladder, half the common bile duct, more than 1/2 of my stomach, and a portion of my small intestines. I survived, needless to say, and have been recovering from this event which is no small task.
Thirty pounds lighter now and feeling to be in good health, I am now facing the decision tomorrow of whether to go back on Ty. I have had minor problems with MS during my recovery but for the most part am feeling better than I have in 5 years. I am still JC virus + and I took Avonex as my first MS drug 15 years ago with a 5 year wait before trying a very short try at Beta, allergic. I had a 3 year wait before starting Ty after a 1 month try of Beta.
I have done super on Ty and love that there have not been any no lesions this whole time as of last April, last MRI. My question is there any evidence about how you can expect to respond after a 6 month vacation from TY? Also, any evidence of a greater PML occurence after such a vacation.
I don't want to do something stupid with my life now that I am pain free, abdominal pain, for the first time in 5 years and starting to love my life again. Thanks for putting up with the long post but felt you needed all the info to give a good opinion.
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