Well I just found out I am PCV+ and now I have to decide what to do. From reading a lot of the past threads I know a lot of you are PCV+ and have done Ty anyway. How do you decide if that is right for you? I know that the risk increases or isn't likely to be an issue until the 2 year mark, but I am not sure which way to turn. On the one hand I am not really in favor of taking the risk as I know what the odds are and I know what my luck is like and I don't want to be that 1 in 1000(as I don't want any of you to be the 1), but on the other hand I live in fear every day that I am not treating the MS and could have another attack at anytime, or my progression is ongoing and I don't know it yet. Every other treament option doesn't seem right for me either, lots of side effects from the interferon, and I already have cardiac and sight issues so that leaves out the Gilenya. Can I ask how others who are PCV+ made their choice?
I am waiting to hear from my neuro as to her opinion, so I am at a stand still for now but wanted to be proactive in my options when she does call.
When we were discussing treatments my neuro mentioned that a new drug was going to be approved by the FDA in 2012 and that is what she really wants me on, but who can wait for the FDA, and then I was also reading about how the insurance companies might not pay for Ty if you are PCV+ in 2012......
Please offer my any advice you are willing to give! I know I am the only who can make my choice, but some outside advice would help me in making my choice.
I am waiting to hear from my neuro as to her opinion, so I am at a stand still for now but wanted to be proactive in my options when she does call.
When we were discussing treatments my neuro mentioned that a new drug was going to be approved by the FDA in 2012 and that is what she really wants me on, but who can wait for the FDA, and then I was also reading about how the insurance companies might not pay for Ty if you are PCV+ in 2012......
Please offer my any advice you are willing to give! I know I am the only who can make my choice, but some outside advice would help me in making my choice.
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