Can anyone give me an idea of what life is like when you're on Tysabri? I know I would go for an infusion once a month. Do you have to have a port? Is your immune system quite low so you have to use that hand gel all the time and wipe the cart handle with a Wet One? Do your current symptoms improve? (I know it will be different for everyone; just asking for your personal experience.)
Will I be incapacitated for a day or week after the infusion, or will I be amped up?
I have pretty much decided in favor of doing the Tysabri, so I want to know what it will be like. I hated Betaseron: the flu-like symptoms that would clear up just in time for the next shot, the painful little knots from wherever I did my shot, having needles in the house and needing to keep them away from the kids. And most of all, never being able to just forget for a while that I have a disease. I'm hoping Tysabri will not be so intrusive.
Will I be incapacitated for a day or week after the infusion, or will I be amped up?
I have pretty much decided in favor of doing the Tysabri, so I want to know what it will be like. I hated Betaseron: the flu-like symptoms that would clear up just in time for the next shot, the painful little knots from wherever I did my shot, having needles in the house and needing to keep them away from the kids. And most of all, never being able to just forget for a while that I have a disease. I'm hoping Tysabri will not be so intrusive.
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