I was at my neurologists office today and was informed there is now a 5th case of confirmed PmL in a patient that was on Tecfidera. They were JC virus positive and had low lymphocyte counts. I was told they were under 50 (first person under 50 with pml from Tecfidera). I was told the highest at risk are Jc positive, on Tecfidera 2+years, <.5 lymphocyte count and over 50...although age might not be as important now due to the new case.
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5th case of PML
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tecfidera and j c virus.
I am diagnosed with a j c virus count of 2.15! and the dr.wants me to be on tecfidera for another month and retest my blood.I decided not to do that,go back to avonex then check my blood to see if my count goes down.The dr.knows I had breast cancer and carry the her2 positive gene.My white blood count was great during chemo.
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